Cerebra Network for Neurodevelopmental Conditions
At the Cerebra Network for Neurodevelopmental Conditions we want to understand more fully sleep in children with rare and complex needs. The clinical needs of these children tend to be understudied, and the tools used to study them are often poorer than for typically developing children.
Historically research in this area has relied on parents simply explaining to researchers how many times their child woke up and for how long for. Asking sleep deprived parents to do this with accuracy is problematic and often over burdens families. To overcome this, our research team will be applying better techniques to look at sleep in children with rare syndromes. Once they have characterised their sleep more precisely, they will look at how sleep might be affecting children in the daytime. – if they’ve slept well, are there also improvements in their mood, behaviour and sociability when they are awake.
The team will also be looking at developing and delivering interventions to put in place before problems with sleep emerge – so that we don’t have to wait for children to develop a sleep difficulty before we step in.
Find Out More
Dr Caroline Richards explains more about the sleep research being carried out by the Cerebra Network for Neurodevelopmental Disorders.
University College London
We will also continue to work with the Sleep Education and Research Laboratory (SERL), at University College London, Institute of Education.
Their team have been analysing data collected from families using our Sleep Service to improve our insight into sleep on children with Neurodevelopmental Conditions. One of the projects we will be working on next year is the development of an App with information for families to use to understand and respond to their child’s sleep problem.
Currently, there is no one place families can easily go to find information on their child’s sleep problem and instantly have solutions. Our App will provide an easy way for families to access information and guidance, at any time, from their home. The App will also link with our Sleep Service.
Find Out More
Dr Liz Halstead is a Senior Research Fellow at University College London. In this chat Liz explains some of the key findings and explains how the experiences of families will be used to improve the information and guidance available.
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