Research News

We regularly publish news from our research partners and how it is informing our services to families.

Preventing Pregnancy Complications #IWD21

At the University of Barcelona we meet two Elisenda’s whose work tries to identify deviations in foetal brain development as ...
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championing mental health

Championing Mental Health #IWD21

Research shows that children with rare genetic disorders often struggle with their mental health. Yet families have trouble finding helpful ...
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Cerebra Women Making A Difference #IWD21

As part of our International Women’s Day campaign we are catching up with some of the women researchers that are ...
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Legal help Cerebra charity for children brain conditions.

LEaP Project Recognises Exceptional Contribution Of Students

The Caroline Gooding Memorial Lecture is an annual event in memory of Caroline Gooding’s pivotal role in conceptualising a rights-based ...
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Zoom meeting

Public Health Wales looking for Two Patient and Public Involvement Members

Public Health Wales are looking for two Patient and Public Involvement members for a research project briefly outlined below: Public ...
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Clinical Criteria For Diagnosing Autism Inadequate For People With Genetic Conditions, Research Suggests

People with certain genetic conditions are likely to have significant symptoms of autism, even if they do not meet all ...
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Our Research Helps Families To Get A Good Night’s Sleep

We know that sleep affects every single aspect of our waking lives – our mood, behaviour, physical and mental well-being, ...
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Embracing Complexity Through Art And Science

Dr Sam Chawner from Cardiff University has teamed up with Phenotypica, an art and science initiative by scientist Ben Murray ...
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Improving Mental Health Support in Schools for Children With Rare Conditions

Lowri is our Knowledge Transfer Project Mental Health Research Associate. She explains about a visual map that was created following ...
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Survey

Two Covid-19 Research Projects Looking For Families To Take Part

Two organisations are looking for your opinions about support during lockdown. The National Children’s Bureau are looking for families, including ...
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