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Mental Health in Children with Rare Genetic Conditions

This toolkit is for parents and carers of children with a rare genetic condition, particularly those known to be associated with neurodevelopmental and mental health conditions (for example, Autism Spectrum Disorder, Intellectual Disability, anxiety and/or depression). The aim of this toolkit is to inform parents about mental health and neurodevelopmental conditions in children with rare

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Looking after your own wellbeing as a parent/carer of a child with a brain condition

Looking after your own wellbeing is one of the most important things you can do for the wellbeing of the whole family. You are the most important person in your child’s life, championing their wellbeing needs every day. For this to be sustainable, it’s really important that you find ways look after your own wellbeing needs too.

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Challenging Parent Carer Blame

Interim implementation research report 1:  Disability and human rights training and guidance for disabled children’s assessors This report builds on 2021 research findings entitled ‘Institutionalising parent carer blame’: research that concluded that social care policies in England create a default position for those assessing disabled children, that assumes parental failings. The research that underpins this

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