This toolkit is for parents and carers of children with a rare genetic condition, particularly those known to be associated with neurodevelopmental and mental health conditions (for example, Autism Spectrum Disorder, Intellectual Disability, anxiety and/or depression).
The aim of this toolkit is to inform parents about mental health and neurodevelopmental conditions in children with rare genetic conditions.
This information was produced under the terms of our information production process.
We rely on your generous donations to fund our vital research and services that improve the lives of children with brain conditions and their families.
Your amazing donations could pay for a set of light-weight crutches for a child to move around more freely.
Your kind donation could pay for a new library book to help parents understand their child’s condition.
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