Parent Guides

We publish a series of guides and factsheets to help families of children with brain conditions with common problems they may be facing. We offer comprehensive, up-to-date advice and research-driven strategies to help you deal with a wide range of issues.

From physical and mental health, dealing with social services, financial and legal affairs and education, all our guides offer expert advice on issues we know you may be facing.

  • A-Z of All Parent Guides
  • Education
  • Emotional and Mental Health
  • Finding Information
  • Legal Social and Financial
  • Physical Wellbeing
Accessing Public Services in Scotland - A problem-solving toolkit - Cerebra - children with brain conditions.

Accessing Public Services in Scotland

The Accessing Public Services Toolkit supports children with brain conditions in Scotland and their carers in accessing the health, social care and education support services they are entitled to.

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Accessing Public Services Toolkit: A problem solving approach

Accessing Public Services Toolkit

The Accessing Public Services Toolkit supports children with brain conditions and their carers in accessing the health, social care and education support services they are entitled to.

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Anxiety: A guide for parents.

Anxiety

This guide describes common signs of anxiety and informs you on how to spots signs of anxiety in children with intellectual disability. It also details specific anxiety disorders.

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Continence Mythbuster

Assessment of Continence Needs

This factsheet identifies and busts five myths around continence services support and assessments.

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Factsheet - Carers Assessments in England - Cerebra the charity for children with brain conditions

Carers’ Assessments in England

This factsheet provides an overview of carers’ assessments for parents and carers of disabled children living in England.

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Factsheet - Carers Assessment in Wales - Cerebra the charity for children with brain conditions

Carers’ Assessments in Wales

This factsheet provides an overview of carers’ assessments for parents and carers of disabled children living in Wales.

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Decision making, confidentiality and sharing infromation - Cerebra the charity for children with brain conditions

Decision Making, Confidentiality and Sharing Information

This guide provides an overview of the law regarding decision making, confidentiality and the sharing of information for parents of disabled children and young people.

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Disability Living Allowance (DLA)

Our guide takes you through each question on the DLA form, giving you explanations of what they mean and tips on how to answer them.

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Disabled Facilities Grants - Cerebra the charity for children with brain conditions

Disabled Facilities Grants

This factsheet gives a short overview of Disabled Facilities Grants for disabled children in England and Wales.

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Education in England - A guide for parents - Cerebra the charity for children with brain conditions.

Education in England

This guide to education is for parents of children with special educational needs (SEN) and/or disabled children living in England.

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Education in Wales - A guide for prents - Cerebra the charity for children with brain conditions.

Education in Wales

This guide to education is for parents of children with special educational needs (SEN) and/or disabled children living in Wales.

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Factsheet - Emotional Well-being - Cerebra the charity for children with brain conditions

Emotional Wellbeing

This factsheet highlights the importance of your own emotional wellbeing as a parent or carer and outlines support and resources that are available to you.

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Finding and Appraising Information and evidence on the Internet - Cerebra the charity for children with brain conditions

Finding and Appraising Information and Evidence on the Internet

This guide suggests how to search the Internet efficiently and how to appraise the huge amount of information which is freely available.

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Finding and Appraising Legal Help - Cerebra the charity for children with brain conditions

Finding and Assessing Sources of Legal Help

Finding and instructing a solicitor for legal help can be one of the more daunting prospects for families and carers of children with a disability. This guide helps make that process as straightforward as possible.

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Learning Disabilities, Autism and Internet Safety - Cerebra the charity for children with brain conditions

Learning Disabilities, Autism and Internet Safety

This guide outlines some suggestions to help parents limit the risk of their child having negative experiences online and understand what action can be taken if they do.

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Factsheet - Managing Challenging Behaviour - Cerebra the charity for children with brain conditions

Managing Challenging Behaviour

This factsheet is for parents, carers, teachers and professionals offering help on how to understand and manage different types of challenging behaviour.

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Money Matters - Cerebra the charity for children with brain conditions

Money Matters

This guide is for parents of disabled children who want to know what financial help may be available to them. It also outlines arrangements that may need to be put in place to manage their children’s finances as they get older.

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Pain - Guide for Parents - Cerebra the charity for children with brain conditions

Pain

This guide outlines the importance of managing pain and will help the parents of children with severe intellectual and/or communication difficulties understand when their child is in pain.

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Recommended Teaching Strategies for Pupils with a Brain Tumour

This factsheet advises how teachers can help a pupil with a brain tumour if their memory and cognition are affected.

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Guide to Research about brain conditions - Cerebra the charity for children with brain conditions

Research About Childhood Brain Conditions

This guide is an overview of current research into childhood brain conditions and the research process. It also helps you evaluate the quality of research and information available. 

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Returning to School - A teachers guide - Cerebra the charity for children with brain conditions.

Returning to School

This guide is for teachers and schools faced with the task of supporting a pupil with a brain or spinal tumour who may face extended treatments, devastating long term side effects and an uncertain future.

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School Transport England - Cerebra the charity for children with brain conditions.

School Transport in England

This guide explains the legal duties on local authorities to provide free school transport for disabled children in England.

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School Transport Wales - Cerebra the charity for children with brain conditions

School Transport in Wales

This guide explains the legal duties on local authorities to provide free school transport for disabled children in Wales.

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FactSheet - Self injurious behaviour in children with intellectual disability

Self-Injurious Behaviour in Children with Intellectual Disability

This factsheet has been written to help parents and carers of children with an intellectual disability to understand what self-injury is, what the causes are and which interventions are effective.

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Sleep - A guide for parents - Cerebra the charity for children with brain conditions

Sleep

This guide has been developed to help parents understand sleep problems in children with intellectual disability and offers advice on how to improve sleep in all children.

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Sleep Cards - Cerebra for children wi.th brain conditions

Sleep Cards

Our Sleep Cards offer different approaches to help you tackle some of the most common sleep problems experienced.

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Sleep Tips Booklet - Cerebra charity for children with brain conditions

Sleep Tips

Our illustrated booklet introduces and explains different techniques for tackling common sleep problems.

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Social Care in England - Cerebra the charity for children with brain conditions

Social Care in England

This guide has been prepared for parents of disabled children in England who want to know how to get help for their child’s social care needs.

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Social Care in Wales - Cerebra the charity for children with brain conditions

Social Care in Wales

This guide has been prepared for parents of disabled children in Wales who want to know how to get help for their child’s social care needs.

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TEST

Scots law provides powerful rights for disabled children to education and support from other services, but sometimes this alone is not enough.

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Toilet Training - Cerebra the charity for children with brain conditions.

Toilet Training

All children are different and toileting problems can have a number of different issues. This guide covers a range of potential causes and suggests a range of approaches that may help.

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Factsheet - Transition to Adulthood in England - Cerebra the charity for children with brain conditions

Transition to Adulthood in England

This factsheet highlights the importance of transition to adulthood in the lives of children with learning difficulties in England.

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Factsheet - Transition to Adulthood in Wales - Cerebra the charity for children with brain conditions

Transition to Adulthood in Wales

This factsheet highlights the importance of transition to adulthood in the lives of children with learning difficulties in Wales.

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What to Do If a Pupil with a Brain Tumour Becomes Palliative and May Die

This infographic provides information on how the school community can best support a pupil with a brain tumour if their diagnosis is potentially terminal.

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Factsheet - What to do if your child isn’t getting the social care support s/he needs- Cerebra the charity for children with brain conditions.

What to Do if Your Child Isn’t Getting the Social Care Support S/he Needs

This factsheet explains what you can do if you’ve been assessed by social services, but still aren’t getting the support you need.

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Factsheet - Child’s Care package is Reduced - Cerebra the charity for children with brain conditions

What to Do if Your Child’s Care Package is Reduced

This factsheet explains what can you do if you are unhappy with the way a local authority has changed or reduced your child’s care package.

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What to do when a child is diagnosed with a brain tumour.

What to Do When a Child is Diagnosed With a Brain Tumour

This infographic offers tips for helping a child with a brain tumour while they are away from school having treatment and for when they return.

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Template Letters

Finding the right words when writing to official bodies can be difficult. We’ve created a series of template letters to make it less daunting for you if you need to write to your local council, social services or health body. Our template letters contain legal information and where necessary we have different templates for England, Wales and Scotland.

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Cerebra Count Me In Lottery

Count Me In Lottery

Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.

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