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Cerebra’s Sleep Service Helps Caroline and Dylan

Caroline and Dylan Caroline is mother to six year old Dylan who is thought to have high functioning Aspergers although the family are awaiting a formal diagnosis. Dylan's condition has a huge impact on the family's daily life, including Dylan's sleep pattern. Caroline shared her story with us: "My name is Caroline, I am mother to three children aged 5, 7, and 15. I also have ...
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Embracing Complexity, Cerebra the charity for families of children with brain conditions

The Embracing Complexity Coalition launches

We have joined leading UK Neurodevelopmental and Mental Health Charities to Launch The ‘Embracing Complexity Coalition’ The Embracing Complexity Coalition launched on the 21st May at an event at the Houses of Parliament hosted by Dame Cheryl Gillan, MP, Chair of the APPG on Autism, Rt. Hon. Matt Hancock, Secretary of State for Health & Social Care and the Chair of the Embracing Complexity Coalition, ...
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Mair Elliott, Cerebra the charity for families of children with brain conditions

The long-term effects of unreliable, inconsistent support in CAMHS

Unreliable and inconsistent support from CAMHS "When we discuss the high staff turnover, lack of reliable support, and other issues within CAMHS services we often think about the immediate distress that is caused to the young person in need of care and treatment. However, the ongoing effects can be just as distressing. My experience of CAMHS, as with many other’s experiences, was of unreliability, numerous ...
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Family with siblings

A Model For Early Years Family Intervention Supports

A model for Early Years family intervention supports for children with global developmental delay/ emerging learning disabilities in Wales: professional system considerations. Dr Emma Johnston My career as a Clinical Psychologist has spanned over 20 years and has been in supporting children with learning disabilities and their families. Over four years ago I took up a post to work with children under 5 with Global ...
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Boy with a female carer, smiling.

Joint Statement on PenCRU by Cerebra and University of Exeter Medical School

The following joint statement concerns termination of funding from the charity Cerebra for the Academic Chair and PenCRU childhood disability research unit at the University of Exeter. Statement by Chris Jones, CEO Cerebra In relation to the contract between Cerebra and the University of Exeter it is with the most sincere regret that the Cerebra Trustees determined to terminate this contract. The decision was not ...
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happy family on a beach

Planning your Child’s Future: Transitioning from Child to Adult

Planning your Child’s Future: Transitioning from Child to Adult The days are long, but the years are short. Words that I never truly understood until my daughter arrived. They will always be our children, but in a flash, they become teenagers and then young adults. We can never start planning for our children’s future and their transition from child to young adult too early. As ...
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Louise takes on Marathon Challenge for Cerebra

Louise Astill, a solicitor from CL Medilaw, a firm specialising in medical negligence and serious injuries, is gearing up to take on her biggest challenge to date, running the London Marathon on 3rd October in support of Cerebra. The London Marathon is a 26.2 mile feat around the streets of London, totalling an eye watering 55,000 steps or the equivalent of running her commute from ...
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Can you guess our most popular post from 2018?

We've crunched the numbers, we've checked them twice and now we can reveal our most popular posts from 2018. 5. Is your child getting unsuitable continence products? If you’ve been told that your child can’t have the continence products they need, you can use our template letter to make a complaint. 4. What can I do if my child needs me to be there in ...
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Back to Basics: Parent Child Relationships in Families with Children who have Typical and Atypical Development

Professor Carlo Schuengel opened his CEDAR seminar series talk by reflecting on the pandemic and what a special time it is to be talking about relationships. It has shown us how we as humans are affected when relationships are as constrained as they have been this past year and has highlighted the undeniable importance of relationship quality on wellbeing. The central focus of the talk ...
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Child with brain condition on a adapted surfboard.

Cerebra surfboard goes global

The team at CIC designed the surfboard in partnership with Roger Cooper for children with limited mobility and brain conditions. It allows wheelchair-bound adrenaline junkies to get out of their chairs and onto the water. The tandem design includes a supportive seat for the child and plenty of space on the back for an experienced surfer to steer it in the right direction. They have been ...
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