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Cara to take on duathlon challenge

Cara Readle Swansea born actress Cara Readle, famous for her role in โ€˜The Story of Tracy Beakerโ€™, will be taking on a duathlon on 20th August to raise money for Cerebra. The 27 year-old, who was born with Cerebral Palsy, has been an Ambassador for us for several years and has never let anything stand in her way. Back in 2014, she completed a 2 ...
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Wales: Update on the Additional Learning Needs System

The Welsh Government issued the following update below on 25 November: The Senedd yesterday approved the โ€˜Draft: Additional Learning Needs Co-ordinator (Wales) Regulations 2020โ€™ย (โ€œALNCo Regulations 2020โ€) which will come into force on 4 January 2021. This marks another significant step towards the implementation of the ALN system; and our goal of transforming the expectations, experiences and outcomes for children and young people with additional learning ...
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Understanding and Reducing Sleep Disorders in Children with Developmental Delay

Dr Caroline Richards and Professor Chris Oliver from the Cerebra Centre for Neurodevelopmental Disorders talk about the Sleep Project which aims to understand and reduce sleep disorders in children with developmental delay. Why is the Sleep Project important for families? Sleep is a universal phenomenon, influencing almost every human activity. We need good quality sleep in order to learn new information, pay attention to the ...
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Legal

SEN Tribunal in Wales issues directions on electronic submission of paperwork

The Special Educational Needs Tribunal for Wales (SENTW) is continuing to hear cases during the coronavirus pandemic but in virtual hearing rooms and requires the parties involved to submit their paperwork electronically. It issued Practice Directions on 26 June 2020 which sets out how the digitised paperwork must be compiled including restrictions on the maximum number of pages in some sections. The Practice Directions have ...
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University of Leeds LEaP students and staff.

Delivering Legal Rights End of Grant Report

The School of Law at the University of Leeds has published its end of grant report summarising the achievements of Cerebra funded research into โ€˜Delivering legal rights: practical problem solvingโ€™. This report summarises the achievements of the Cerebra Legal Entitlements and Problem-Solving (LEaP) Research Project for the period January 2016 โ€“ December 2019 The laws of the four nations of the UK place enforceable duties ...
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Samuel is our Star Volunteer!

Samuel and Angel In 2017 we welcomed Samuel Turner to team Cerebra as a volunteer and Samuel, his family and friend Angel Jolly have done us proud! They have held bake salesย to raise both money and vital awareness to Cerebra and have even visited HQ so they could meet Cerebra staff. Always eager to spread the word about Cerebra, Samuel recently spoke about us in ...
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Brody, Me and Global Development Delay

Brody Laura is mother to 5 year old Brody who, despite having lots of health issues, has no definitive diagnosis. Laura writes about their journey as a family in her blog Brody, Me and GDD. In this blog post, Laura explains their journey as a family. "Our beautiful Brody entered the world just over 5 years ago. He passed all of his newborn tests and ...
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My Experience of Applied Behavioural Analysis

Razwana Mushtaq, whose 5 year old daughter has autism, discusses her experience of getting a diagnosis for her daughter, recent research on early intervention and what it is like running an Applied Behavioural Analysis (ABA) programme, with the support of UK Young Autism Project (UKYAP)   Background As parents we want our kids to be happy and independent. We need to support them in order ...
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The Effect of Delay in Autism Diagnosis

We've been asking parents to share their experiences with obtaining an Autism diagnosis for their child and the effects that delay can have. In this article one family tell us their experiences. . "Our daughter never slept easily. Midwives, health visitors, GPs, all offered advice and we tried everything. Our health visitor finally advised me to have one night a week in a hotel to ...
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Trainers

Change in Lock Down Exercise Guidance for People With Health Conditions

On 23 March 2020 the Prime Minister announced that all citizens were only allowed to leave where they were living for exercise once a day, which was repeated in guidance that the government published on 29 March 2020. This raised immediate concerns for supporters of people with medical conditions, mental health problems, learning difficulties and autism where more frequent exercise was required to maintain their ...
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