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Boy with a female carer, smiling.

Knowledge Transfer Partnership success!

We are delighted to announce that we have been successful in our Knowledge Transfer Partnership (KTP) bid with the Institute of Psychological Medicine and Clinical Neurosciences, Cardiff University. This KTP is funded by Welsh Government and Innovate UK. This is what it is about. What is a Knowledge Transfer Partnership (KTP)? The Knowledge Transfer Partnership (KTP) scheme helps businesses in the UK to innovate and ...
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Family with siblings

Follow-up: Your experiences of Obtaining a Parent Carer Needs Assessment

Last month we published an article where our LEaP Project asked you for your personal experiences of obtaining a Parent Carer Needs Assessment (PCNA). The aim of gathering this important information is to help our research team assess how widespread the issue of denied or combined PCNAs are. If you missed the article, you can read it here. We received a number of emails from ...
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How to look after yourself

We know from research that parents of children with a learning disability can be twice as likely to experience high stress levels as do other parents. High levels of stress can have a negative impact on your well-being. In this article we look at some ways that you can look after your own well-being. Not all of these will work for everyone, and there could be ...
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Legal Entitlements and Problem-Solving (LEaP) Project Cerebra

Our Legal Rights Service Helps Family With Parent Carer Needs Assessment

Elena got in touch with our Legal Rights Service after her local authority (LA) repeatedly refused to undertake a standalone Parent Carer Needs Assessment (PCNA). Her 10 year old son, H, has a diagnosis of autism with Pathological Demand Avoidance. Elena self-referred for a PCNA to try to get support for H and the whole family as they were struggling due to his disability. Her ...
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BorrowBox is coming soon!

We're delighted to announce that BorrowBox is coming soon to our library. With BorrowBox you'll be able to borrow e-books and e-audiobooks from Cerebra 24 hours a day, 7 days a week. . Recognised as the No1 library download platform in the world, BorrowBox is the brainchild of Bolinda Digital. Unique because it will enable members of our library to download and borrow eBooks and ...
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smiling little boy who got a good night's sleep thanks to the cerebra sleep service

Bedtime Settling and Night Time Waking

Cathy and her family were all struggling with the impact of her son's inability to settle at bedtime and his waking during the night. Harry, aged 2, was diagnosed with Mosaic Down’s Syndrome a couple of weeks after birth, and, last year, was also diagnosed with Avoidant and Restrictive Food Intake Disorder (ARFID). As a result of his Down’s Syndrome, Harry has a speech delay ...
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Delivering legal rights through practical problem-solving

In this article we take a look at our Legal Entitlements and Problem-Solving (LEaP) Project - why we started it, what we do, what we've achieved so far and the longer term impact of our work. Why we started the Project Disabled children and their families sometimes need extra support in order to have a normal everyday life - for example, help with bathing or ...
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Legal help Cerebra charity for children brain conditions.

Guidance in England for Returning to School

The following information relates to England only. It does not apply to Wales. In England, the Prime Minister has announced that schools, colleges and nurseries are currently on track to reopen for some year groups on 1 June 2020. However, no firm decision has been made on this yet. The Department for Education has published new guidance for supporting children and young people with special ...
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Ollie’s Story

Ollie with his mum and brother We are extremely excited to have been named Specsavers' charity of the year for Wales this year. As part of this, we are looking at the stories of some of the families that we have helped in Wales. Ollie Taylor was born a fighter. Diagnosed with Wolf Hirschhorn Syndrome at birth, a rare neurological condition that affects just one ...
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Family with siblings

Why Our Research is Important – Cerebra Family Research Group

Centre for Educational Development, Appraisal and Research (CEDAR) University of Warwick Cerebra Family Research Group “Strengthening families” Why our research is important One of the biggest influences on the development of all children is their family. Children with brain conditions are no different to all other children in this respect – their development is also affected by what happens within their family. The context of ...
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Cerebra Count Me In Lottery

Count Me In Lottery

Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.

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