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Wales: Additional Learning Needs Code and Regulations Approved

The SEN/ALN forms passed a new milestone when the ALN Code and regulations were approved by the Senedd on 23 March. Along with the ALN Act 2018, the code and regulations will create the statutory ALN system in Wales. From September 2021 the ALN system will come into force over a three-year phased implementation period. In a written statement issued on 2 February the Minister for ...
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Lowri

Our Knowledge Transfer Project (Mental Health) Identified As Good Practice

Genetic Alliance UK has published the final report on the Cross Party Group on Rare, Genetic & Undiagnosed Conditions highlighting our KTP project as a case study of good practice which could support the development of a future Welsh Plan for rare diseases. The Group has heard experiences from people affected by rare conditions, patient group representatives, health care professionals and researchers over the last ...
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Student Group Photo

Law Students Investigate Social Needs Assessments

The Cerebra Legal Entitlements and Problem-Solving (LEaP) project is innovative and helps families of children with brain conditions cope with the legal barriers they face. This programme is led by Professor Luke Clements, with the support of Dr Ana Laura Aiello. We listen to families and help them get the knowledge they need to access health, social care and other support services. We identify the ...
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A History of Controversies over the treatment of autism with behavioural therapies

Nikita Hayden Milana Aronov opened her CEDAR Seminar Series talk by highlighting how relatively under-explored autism is in the humanities. Where historians do study autism and disability, it rarely gets on the radar of families, practitioners, educators, or health and psychology researchers. This seems a pity. We have a lot to learn from history, especially for those of us engaged with marginalised groups, including autistic ...
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mum putting her daughter to bed

Sleep Seminars

We're excited to launch our new online seminars. They take place on Zoom and are a shorter version of our in-person sleep workshops. Sessions are limited to 15 places so our Sleep Practitioners can answer questions and interact with participants so booking is essential. Upcoming Seminars We don't have any seminar dates set yet, check back soon or follow us on social media to find ...
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Sleep Seminar Booking Form

SeminarName and DatePersonal detailsAddress* Street Address Address Line 2 City State Zip/ Postal Code How did you hear about us? (optional)Name* Title MrMrsMissMsDrProf.Rev. First Last Email* Phone*About Your ChildChild's Name* First Last Date of Birth*Does your child have a diagnosis?*YesNoChild's Diagnosis*Are they under assessment for a diagnosis?*YesNoOur seminars are for parents of children who are diagnosed with a brain condition or are going through the ...
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henry and his trailer

A unique set of wheels for 3-year-old Henry

A bike trailer created by our Innovation Centre at the University of Wales Trinity Saint David (UWTSD) has given a young boy a new taste of freedom Henry Waines, aged 3, needs to be ventilated 24 hours a day via a tracheostomy. This means that he has to take his ventilator with him everywhere he goes. Like any young boy, Henry wants to play and be ...
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Preventing Pregnancy Complications #IWD21

At the University of Barcelona we meet two Elisenda’s whose work tries to identify deviations in foetal brain development as early as possible to help prevent and/or minimise childhood disability. Georgia Mappa is based at the University of Leeds where they are trying to improve the prediction of mothers at risk of early delivery. Elisenda Bonet-Carne Scientific Manager at BCNatal Fetal Medicine Research Center Elisenda ...
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Cerebra Women At The Forefront Of Research #IWD21

In this post we’re meeting Tracy Elliott who is driving forward our research and information work, Ana Aiello who is passionate about helping families to access their rights, Samantha Flynn who is inspired to improve the offering of services to support people with learning disabilities and their families and Liz Halstead who is investigating behavioural interventions and digital health applications for sleep. Tracy Elliott - ...
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