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Two Covid-19 Research Projects Looking For Families To Take Part

Two organisations are looking for your opinions about support during lockdown. The National Children’s Bureau are looking for families, including those with a disabled child, to give their opinion about the government’s support for children and families during the pandemic in order to influence future policy making. It involves monthly interviews and participants will receive a £10 shopping voucher per interview. The research is interested ...
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Delivering legal rights through practical problem-solving

In this article we take a look at our Legal Entitlements and Problem-Solving (LEaP) Project - why we started it, what we do, what we've achieved so far and the longer term impact of our work. Why we started the Project Disabled children and their families sometimes need extra support in order to have a normal everyday life - for example, help with bathing or ...
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Parent and Carer Rights

Useful links There have been recent changes to the law relating to carers in England and Wales. Carers’ rights in England are set out in the Children and Families Act 2014, which came into force on 1st April 2016. For information on the law which applies in England, see: Contact a Family’s factsheet on carers’ assessments http://www.cafamily.org.uk/media/925803/carers_assessments.pdf Carers UK’s Looking After Someone (England) guide Carers Trust ...
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Birmingham Experts Launch Pioneering Autism Research

Leading researchers from Birmingham are today (25th October 2017) launching a major, new UK study into autism and mental health problems – and are calling for autistic people and their families to get involved. The research is a collaboration between leading investigators at the Cerebra Centre for Neurodevelopmental Disorders at the University of Birmingham, Aston University, and leading UK autism research charity, Autistica. An estimated ...
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Vanessa with Dylan, Ryan and Taran

Cerebra to benefit from Co-op Community Fund

Vanessa with Dylan, Ryan and Taran This year we have been chosen to benefit from the Co-op Local Community Fund. At a time when funds for charitable organisations are becoming more difficult to access, we are incredibly grateful for this opportunity to make real difference. We are raising funds so that we can continue our work to help families who have a child with a ...
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Complaints, Public Bodies and Government Guidance-England

A factsheet for parents The law is often complex and difficult to understand, so in order to help interested parties, including public bodies, understand what the law expects them to do the government sometimes issues 'guidance'. Government guidance can be a very powerful tool in understanding what public bodies should be doing and being familiar with it can be very useful should you ever need ...
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Disabled Facilities Grants - Cerebra the charity for children with brain conditions

Disabled Facilities Grants

A factsheet for parents This factsheet gives an overview of disabled facilities grants for disabled children. It provides information about what they are and will help you access the information, support and resources that are available in order to apply for them.
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a boy and girl build a sandcastle

Travel insurance covering children with disabilities

  At this time of year, one of the questions coming in to our helpline is about travel insurance that will cover children with pre-existing conditions. Many people have travel cover potentially included with a service they already use, such as car insurance, a membership subscription or a bank account, but they have looked in the small print and found that pre-existing conditions are excluded. Should ...
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Family

‘Vulnerable’ Does Not Mean ‘at Risk of Harm’

Since the start of the Coronavirus pandemic, we have heard people who are more likely to be ‘at risk’ by the pandemic being described by the Government as ‘vulnerable’. However, as the word has been applied to many different groups of people there is a lot of confusion and misunderstanding about who is deemed to be ‘vulnerable’ and what it actually means. Special Needs Jungle ...
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New Toys for Our Postal Lending Library

We recently received some funding from Children in Need to purchase some new toys for our Postal Lending Library. Check out some of them in the video below. If you would like more information about our Postal Lending Library, please contact Jan on [email protected] https://www.youtube.com/watch?v=aRB8vX--PdU
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