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Joshua's 18th birthday

Joshua’s Transition: Part 3

Emma tells us about the challenges of transitioning from child to adult services. You can read part one here and part two here. Well Joshua is now 18 years and 1 month old and so we survived his coming of age and it was a well celebrated birthday. He went to the theatre twice, he went to Donald’s for his actual birthday tea, he enjoyed afternoon ...
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Cerebra Innovation Centre wins award.

We won! Innovation Centre success

The Cerebra Innovation Centre (CIC), a partnership between Cerebra and the University of Wales Trinity Saint David (UWTSD), has won a prestigious award for Innovation, Science and Technology Award at the annual St David Awards ceremony organised by Welsh Government. CIC is a team of engineers based within UWTSD’s Swansea College of Art. They design and build innovative, bespoke products to help disabled children to ...
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Mum changing a baby

Have you been told that your child is too young to have a continence assessment?

Has your local continence team told you that your child isn’t old enough to have a continence assessment? Our new template letter could help you to make a complaint. Our Legal Entitlements and Problem-Solving (LEaP) Project helps families who are struggling to get the support they need from health or social care services. We recently heard from a parent who had been told that her ...
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Christine Bunting

Christine Bunting takes on her biggest challenge yet as she prepares to trek to Mount Everest Base Camp

Christine Bunting, a lawyer from specialist Court of Protection law firm Hyphen Law, is about to take on the biggest challenge of her life as she prepares to trek to the world-famous Mount Everest Base Camp to fundraise for Cerebra. The tough trek will involve climbing the legendary Everest Trail to Base Camp a (literally) breath-taking 5,360 metres above sea level. To put this into ...
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School transport, Cerebra help with families of children with brain conditions.

Amelie gets transport to school, with help from our LEaP Project

Karen, who lives in Surrey, contacted our LEaP Project in January for help with a school transport problem. Her daughter, Amelie, is 11 years old and has Phelan McDermid syndrome. The local council had been providing transport for Amelie to go to a special school for children with severe and profound learning difficulties. When Karen told the council that they were moving to a new ...
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St David Awards

Cerebra Innovation Centre shortlisted for a St David Award

The Cerebra Innovation Centre (CIC), a partnership between Cerebra and the University of Wales Trinity Saint David (UWTSD), has been shortlisted for a prestigious St David Award. CIC is a team of engineers based within UWTSD’s Swansea College of Art. They design and build innovative, bespoke products to help disabled children to discover the world around them. Their designs are desirable and exciting as well ...
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Joshua's Transition to Adulthood with help from Cerebra.

Joshua’s Transition: Part 2

Emma tells us about the challenges of transitioning from child to adult services. You can read part one here. It is now the month before Joshua's 18th birthday, so we really are on the countdown to adulthood now. We have recently had a weekend with a hospital admission for seizures, which brought home some of the reality of what is to come. In the ambulance ...
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Sleep Advice Service Cerebra

Meet our new Sleep Practitioners

We're thrilled to introduce you to the two newest members of our sleep team, Carwyn Tywyn and Claire Cox. Carwyn   Hi, my name is Carwyn and I was delighted to begin 2019 in my new role as Sleep Practitioner at Cerebra. My early career background was in current affairs, both as an academic and a journalist. I was awarded a PhD in Welsh Politics ...
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Nappies

Has your child been refused a continence assessment at home?

Has your local continence team told you that they can only assess your child at a school/hospital, rather than at home? Our new template letter could help you to make a complaint. Our Legal Entitlements and Problem-Solving (LEaP) Project helps families who are struggling to get the support they need from health or social care services. A parent recently contacted the Project for advice about ...
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