One of our Sleep Practitioners explains how she helped a family struggling with head banging problems: "Mary came to one of our sleep clinics looking for advice on her eight year old son George who has epilepsy. George was head banging every night, throughout the night. Mary was concerned, as he would head bang so vigorously that it would wake him up and therefore he ...Read more →
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Sarah and Theo Our Sleep Practitioner Sarah Coldrey is used to helping families with their sleep difficulties but, as she explains, that doesn't mean she doesn't experience the same difficulties with her child Theo. Theo was born prematurely and Sarah updated us on his progress as well as how she settled Theo into a better bedtime routine. When Theo reached one we found that we were ...Read more →
Mum Lisa, who's son Kyle has Potocki-Lupski Syndrome, tells us their story. "Kyle was born by natural birth on June 13th 2013 weighing 7lb 5oz. He had distinctive facial features like elf and his arms and legs were very thin with brittle bones. At around 3 months old I got him weighed by the midwife at the clinic and explained that Kyle wasn't really interacting ...Read more →
Our Regional Officer Lilly Fahey recently helped Emma, mum to 12 year old Rory who has Global Developmental Delay. Emma told us their story. "I am a mum; my son Rory will be 12 years old this month. Ever since he started primary school he has been 'Statemented'. Before Rory started Primary school we had 'Portage' come round to my home to see Rory and ...Read more →
Gordon Stuart When Cerebra Ambassador Gordon Stuart first started his Arctic Rider project, he couldn't have imagined the distances he would cover and the huge amount of money he would go on to raise for Cerebra and other charities close to his heart. He first started The Arctic Rider project as a way of using his passion for motorbikes to help raise money and awareness for Cerebra, ...Read more →
Rob and Poppy with Anthony, Rhys and Kevin On Saturday 19th August two very special Superheroes joined team Cerebra for the first ever Superhero Triathlon at Dorney Lake, Windsor. The Superhero Tri is the UK’s one and only disability sports series for the everyday Superhero and their family and friends. It was also particularly exciting because it was the first ever Superhero Tri so our ...Read more →
The school of law team at the University of Leeds Our student researchers at the School of Law, University of Leeds have published a report about the accuracy and accessibility of school transport information on local authority websites in England. The students looked at 71 websites and identified serious failings in the information provided to families. Almost 40% of the websites failed to clearly explain ...Read more →
In the latest of our series of articles from young people talking about growing up with a disability, Jo tells us her experiences: "I was asked to write an article for Cerebra about what it’s like for me as a young disabled person. This, as I’m sure many of you are aware is a massive topic, and not one that can be covered in one ...Read more →
Rhys, Anthony and Kevin When Rhys watched his sister take part in her first sports day, he wanted nothing more than to join in. His limited mobility meant that he couldn't run the race himself but dad Anthony had a great idea to help Rhys get involved. Anthony said: "I couldnt disappoint Rhys after he had such a great afternoon and was getting excited about ...Read more →
We would like to say a massive well done and thank you to Christine Bunting who completed a wing walk to raise money for us on 4th August. Christine is a member of our London Minds group and is no stranger to taking part in high adrenaline activities, having already completed a skydive back in 2015. For this exciting new challenge, Christine took to the ...Read more →
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