Tracy Elliott, our Head of Research and Information explains why timely diagnosis of autism is important and tells us her family's story: Tracy and her family "My daughter has a diagnosis of autism. The journey to diagnosis was traumatic and bewildering for my family. Aged 15 her self harming behaviour, driven by depression and anxiety, had become so severe she was a danger to herself ...Read more →
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In a survey we carried out in 2016 (with 1937 respondents), less than 41% of parents receive written information when they get a diagnosis for their child. In addition many families felt that the lack of reliable, accessible and impartial information hampered their ability to make informed choices for their family. So as a parent or carer of a child with a brain condition you ...Read more →
Louise French recently got in touch with us after she saw a Scooot Seat in action and knew it would be beneficial for her son Cameron. She told us their story. Cameron was my third baby. He was born a healthy little boy, brother to Harris and Alfie, he made my family complete. At 5 weeks old he became ill and was admitted to hospital where ...Read more →
Holly and her rocking dinosaur "We contacted the Cerebra Innovation Centre (CIC) after realising the first birthday present we had bought for our daughter, when she was just a month old, was completely inappropriate. Holly loves rocking and we really wanted to get her a rocking animal for her first birthday and we found a dinosaur. The problem was that it was unlikely Holly would ...Read more →
Claire, Isaac and the whole family Claire is mum to eight year-old Isaac. Here's her story: . "Isaac is 8 years old and the light of our lives. His big brother Josh and big sister Miriam adore him. He's non verbal, double incontinent, and doesn't really have any understanding of the world around him. He's very sensory. He puts everything in his mouth, loves water ...Read more →
Find out which are the 10 most popular books for children in our postal lending library. C0031 & C0092 Hands are not for Hitting by Martine Agassi A board book suitable for young children C0077 My Brother is Different by Louise Gorrod A non-fiction book published by the National Autistic Society featuring illustrated characters, suitable for all age groups C0093 & C0233 Can I Tell ...Read more →
The Welsh Government has been working on reforming the special educational needs system in Wales since the summer of 2007 and is now in the process of bringing in new legislation. A Draft Additional Learning Needs and Education Tribunal Bill was published last December followed by a draft Code of Practice on February 14. The Bill itself is currently under consultation until March 3 but ...Read more →
We introduce the newest member of our Innovation Centre and would love to hear from you if your child would like to try horsey activities but you can't find a helmet to fit. New team member Maria Kemeys "Hi all, my name is Maria Kemeys. I am the newest member of the CIC team as their new Business Development Officer. I am a recent graduate ...Read more →
Household income for families with a disabled child has been shown to be around 13% lower than for those with non-disabled children. At the same time they incur higher rates of expenditure associated with disability (1). Our aim is to equip you with the knowledge, skills and confidence you need to manage your children’s finances. Here are some of the ways we can help: DLA ...Read more →
Five members of Fetal i+D team at the University of Barcelona took on the challenge of running the Barcelona Half Marathon on Sunday February 12th. The runners are all medical doctors and researchers from the team and work on a daily basis to diagnose and treat fetuses with neurodevelopmental risks. They all gladly offered to run as a way of getting more involved with their community and ...Read more →
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