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Cerebra Research Support Network – Help us make a difference

We are looking for people with lived family experience of childhood brain conditions to join our Research Support Network. Can you help us to make a difference? What is the Research Support Network? Our Research Support Network is made up of people with lived family experience of childhood brain conditions. That could be as a parent, carer, or sibling or as a young person directly affected. ...
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Samuel and his family visit Cerebra HQ

Samuel, Angel, Jacky and Barry in our Fundraising Office We recently had some very special visitors at Cerebra HQ. Samuel Turner, his family and friend Angel are loyal supporters of Cerebra and have done lots if things to raise money for us including a bake sale at their local fete. The whole family made the trip from their home in Essex to Cerebra's Head Office ...
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Books on ADHD in the library

Check out the books on ADHD that you can borrow from our postal lending library for free. For parents L6329 & L6365 ADHD Living Without Brakes by Martin Kutscher L6450 & L6578 Calm Your Hyperactive Child: coping with ADHD and other behavioural problems by Sabina Dosani L6727 Power Parenting for Children with ADD/ADHD: a practical parent’s guide for managing difficult behaviours by Grad Flick L6508 ...
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My Experience of Applied Behavioural Analysis

Razwana Mushtaq, whose 5 year old daughter has autism, discusses her experience of getting a diagnosis for her daughter, recent research on early intervention and what it is like running an Applied Behavioural Analysis (ABA) programme, with the support of UK Young Autism Project (UKYAP)   Background As parents we want our kids to be happy and independent. We need to support them in order ...
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Impact of Headbanging and Sensory Issues on Sleep

One of our Sleep Practitioners explains  how she helped a family struggling with head banging problems: "Mary came to one of our sleep clinics looking for advice on her  eight year old son George who has epilepsy. George was head banging every night, throughout the night. Mary was concerned, as he would head bang so vigorously that it would wake him up and therefore he ...
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Sleep Practitioner Sarah Tells of her Own Experience of Sleep Training

Sarah and Theo Our Sleep Practitioner Sarah Coldrey is used to helping families with their sleep difficulties but, as she explains, that doesn't mean she doesn't experience the same difficulties with her child Theo. Theo was born prematurely and Sarah updated us on his progress as well as how she settled Theo into a better bedtime routine. When Theo reached one we found that we were ...
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Support for Potocki-Lupski Syndrome

Mum Lisa, who's son Kyle has Potocki-Lupski Syndrome, tells us their story. "Kyle was born by natural birth on June 13th 2013 weighing 7lb 5oz. He had distinctive facial features like elf and his arms and legs were very thin with brittle bones. At around 3 months old I got him weighed by the midwife at the clinic and explained that Kyle wasn't really interacting ...
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Support for Global Developmental Delay

Our Regional Officer Lilly Fahey recently helped Emma, mum to 12 year old Rory who has Global Developmental Delay. Emma told us their story. "I am a mum; my son Rory will be 12 years old this month. Ever since he started primary school he has been 'Statemented'. Before Rory started Primary school we had 'Portage' come round to my home to see Rory and ...
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The Arctic Rider Takes on New Alaska Challenge

Gordon Stuart When Cerebra Ambassador Gordon Stuart first started his Arctic Rider project, he couldn't have imagined the distances he would cover and the huge amount of money he would go on to raise for Cerebra and other charities close to his heart. He first started The Arctic Rider project as a way of using his passion for motorbikes to help raise money and awareness for Cerebra, ...
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Team Cerebra at the Superhero Series!

Rob and Poppy with Anthony, Rhys and Kevin On Saturday 19th August two very special Superheroes joined team Cerebra for the first ever Superhero Triathlon at Dorney Lake, Windsor. The Superhero Tri is the UK’s one and only disability sports series for the everyday Superhero and their family and friends. It was also particularly exciting because it was the first ever Superhero Tri so our ...
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