Information and support for parents of a child recently diagnosed with a genetic condition

Emotional and Mental Health | Factsheet | Finding Information

Understanding your child’s diagnosis can help you better identify their individual needs and get support. We’ve put together some suggestions about where you can access information and support in the community.

genetic diagnosis
First published 2021. This edition 2021. Review date 2024

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After diagnosis: what now?

This factsheet has been prepared as a starting point for parents of children that have just been diagnosed with a brain condition. It aims to provide an overview of the resources and information they need to get advice, help and support for their family.

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