Information and support for parents of a child recently diagnosed with a genetic condition

Emotional and Mental Health | Factsheet | Finding Information

Understanding your child’s diagnosis can help you better identify their individual needs and get support. We’ve put together some suggestions about where you can access information and support in the community.

genetic diagnosis
First published 2021. This edition 2024. Review date 2027.

How helpful was this information?

  • This field is for validation purposes and should be left unchanged.

This information was produced under the terms of our information production process.

Related Downloads

After diagnosis: what now?

This factsheet has been prepared as a starting point for parents of children that have just been diagnosed with a brain condition. It aims to provide an overview of the resources and information they need to get advice, help and support for their family.

Make a Donation

Please help support our vital work that enriches the lives of thousands of children and their families every day.

Cerebra Count Me In Lottery

Count Me In Lottery

Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.