Working with you and your amazing child

Cerebra is the national charity helping children with brain conditions and their families discover a better life together.

Make a Donation

Please help support our vital work that enriches the lives of thousands of children and their families every day.

What We Do

Over 500,000 children in the UK live with a brain condition. This can make normal activities such as learning, playing or simply experiencing the world a huge challenge. Through our research we offer solutions and advice to help these children and their families enjoy lives full of hope and discovery.

I need advice on

education and transport

Getting the right education for your child – and sometimes just getting them there – can be a challenge.

We have guides to help you access the the right education for your child in England and Wales.

We also have guides on school transport in England and Wales.

DLA and accessing public services

We have a wide range of resources that help parents and carers access legal, social and financial help.

Download a step-by-step guide to filling in the Disability Living Allowance Claim Form.

Our Accessing Public Services Toolkit offers solutions to common problems when dealing with statutory agencies.

View information in our Legal, Social and Financial section.

getting some sleep

At Cerebra we provide support and advice to help your child – and everyone in your family – get a good night’s sleep.

Download our Sleep Guide or look at our other sleep resources.

Tackle some of the most common sleep problems with some quick tips from our Sleep Cards.

Contact our sleep team for one-to-one help.

stress and emotional wellbeing

We all know that mental health is as important as physical health. Here are some resources to help you look after yourself and your loved ones.

Our Factsheet on Emotional Wellbeing looks at the importance of looking after yourself if you are a parent or carer.

We also have a Guide to Anxiety to help you spot signs of anxiety in your child and how to help them.

toilet training and continence

Toilet training can have a number of different causes and as a result require a range of approaches to manage and resolve issues.

Our Guide for Parents helps you understand your child’s individual needs when toilet training.

Our infographic Guide to Toilet Training is a visual aid to help you understand common problems and offers techniques to help.

managing behaviour

Some behaviours are challenging for professionals and teachers as well carers and parents looking after children with a brain condition.

Download our Managing Challenging Behaviour Factsheet.

Our Guide to Pain helps you identify and manage pain in a child who is unable to communicate verbally.

understanding my child's condition

Knowledge based on current research gives you the power to help your child, whatever their diagnosis.

You can borrow a book on your child’s condition from our library to help your understanding.

Our Guide to Research About Childhood Brain Conditions provides an introduction to research and offers advice on how to find good quality research and information.

Calling all Crafters

Did you know that knitting and other crafts are proven to help your mental health? Mental health is very important to us here at Cerebra as anxiety and low mood is a widespread problem for children with genetic syndromes and intellectual disability – more common than it is for the general population.

This autumn and winter we’re encouraging you to take a break, catch-up with friends and loved ones and inject a bit of craft into your day! Our Knit and Natter is a great way to enjoy much-needed time together, whilst also supporting a fantastic cause.

Our Research

Research is the foundation for all our work. Whether we are providing an innovative solution to a new problem or new research on an existing condition, we partner with our experts to produce research-driven, evidence-based services, advice and support.

Helping children and families get the rest they need this Christmas

With Christmas just around the corner, I think it’s fair to say that after the year it’s been, we’re all in need of some festive joy and cheer!

We’ve launched our Christmas campaign in the hope of spreading some of this to children living with a brain condition and their families who have found each day such a struggle since the pandemic.

With care and respite disrupted and routines completely turned upside down, our Sleep Support is playing a crucial role in helping many of these families through their daily challenges by ensuring they get the rest they desperately need. In doing so, we’re hoping many more families will be able to have a peaceful and happy Christmas.

Latest News

Classroom

Mental Health and Wellbeing Toolkit for Primary Schools

As schools prepare for children and young people to return in September, supporting and prioritising mental health and wellbeing will be more important than ever. ...
Read More
Legal

41 Local Authorities are unlawfully discriminating against autistic children

According to a report published today by Disability Law Service, Leeds University, Cerebra and the BBC, at least 41 Councils across England have policies that ...
Read More
Legal and financial help Cerebra charity for children brain conditions.

The Lessons We’ve Learned From Covid

Our Legal Rights Service provides families of children with brain conditions with help when facing difficulties accessing support services they are entitled to. As part ...
Read More
Letter writing

England: New and Updated Government Covid-19 Guidance

Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and the NHS. This is sometimes ...
Read More
Cerebra Count Me In Lottery

Count Me In Lottery

Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.

Our Services

We offer a range of free services that enrich the lives of children with brain conditions and support their families and carers.

Sleep Service

Sleep Advice Service

Advice and support helping you and your child get a good night’s sleep.

Library

Toy and Book Library

Borrow specialist books and toys from our free and easy to use library.

Parent Guides

Parent Guides

Comprehensive guides to legal, social, financial, educational and health issues. 

Cerebra Innovation Centre

Cerebra Innovation Centre

See how our dedicated team in Swansea might help your child with an incredible invention.

LEap

Legal Rights Service

Get information and help about your legal rights to health and social care services.

we're still here for you

Make your donation go twice as far with the Big Give Christmas Challenge

Donate through our Big Give page between the 1st and 8th December and your donation will be doubled by our champions.

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