Dealing with public bodies and thinking about finances can be overwhelming so we have a series of guides and factsheets to help families of children with brain conditions with common problems they may be facing. Covering a range of legal, social and financial issues, these are useful tools in helping you understand your situation regarding your rights and entitlements. They offer comprehensive, up-to-date advice and strategies to help.
Social Care in England and Wales
As the parent or carer of a disabled child you need to know the help you are entitled to in getting support for your child’s social care needs. Our guides outline exactly the social care your local authority is responsible for and the help that is available to you as a parent or carer. We have created a guide for England and Wales respectively.
DLA Guide
Anyone who has ever tried to fill in a Disability Living Allowance (DLA) claim form will know what a huge and daunting task it can be. Our step-by-step guide to filling it in makes it easier for you. The guide takes you through all the questions on the DLA form, explaining what each one means and giving tips on how to answer. It also offers advice on how to appeal if you are unhappy with the decision.
Transition to Adulthood in Wales
Managing the transition from childhood to adulthood requires extra care and sensitivity from the parents of children with brain conditions. Our factsheet provides information about what is involved and helps you navigate and access the information, support and resources that are available for parents and carers in Wales.
Transition to Adulthood in England
Managing the transition from childhood to adulthood requires extra care and sensitivity from the parents of children with brain conditions. Our factsheet provides information about what is involved and helps you navigate and access the information, support and resources that are available for parents and carers in England.
Carers' Assessments
These two factsheets aim to provide an overview of carers’ assessments for parents and carers of disabled children living in England and Wales. The law in this area is complicated and these short guides will give you an idea of your rights.
Legal Rights
Our Legal Rights Service provides families of children with brain conditions with free legal advice if they are facing difficulties accessing support services. It has been developed through our innovative LEaP project in conjunction with the School of Law at the University of Leeds.
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Count Me In Lottery
Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.