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Legal

SEN Tribunal in Wales issues directions on electronic submission of paperwork

The Special Educational Needs Tribunal for Wales (SENTW) is continuing to hear cases during the coronavirus pandemic but in virtual hearing rooms and requires the parties involved to submit their paperwork electronically. It issued Practice Directions on 26 June 2020 which sets out how the digitised paperwork must be compiled including restrictions on the maximum number of pages in some sections. The Practice Directions have ...
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Family with siblings

Follow-up: Your experiences of Obtaining a Parent Carers Needs Assessment

Last month we published an article where our LEaP Project asked you for your personal experiences of obtaining a Parent Carers Needs Assessment (PCNA). The aim of gathering this important information is to help our research team assess how widespread the issue of denied or combined PCNAs are. If you missed the article, you can read it here. We received a number of emails from ...
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Legal Entitlements and Problem-Solving (LEaP) Project Cerebra

Our Legal Rights Service Helps Family With Parent Carer Needs Assessment

Elena got in touch with our Legal Rights Service after her local authority (LA) repeatedly refused to undertake a standalone Parent Carer Needs Assessment (PCNA). Her 10 year old son, H, has a diagnosis of autism with Pathological Demand Avoidance. Elena self-referred for a PCNA to try to get support for H and the whole family as they were struggling due to his disability. Her ...
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Boy with a female carer, smiling.

Cerebra Funding for The Cerebra Network for Neurodevelopmental Disorders

We are delighted to announce £829,000 of funding for the Cerebra Network for Neurodevelopmental Disorders. Tracy Elliott, Head of Research and Information at Cerebra explains: "This funding, spread over the next four years, marks a strategic shift in our approach to funding research. We are investing in a collaborative and vibrant network of researchers, spread over different university centres, with the combined aim of improving ...
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Family with siblings

Autism and Lack of Social Care Support – Can You Help?

Our Legal Entitlements and Problem Solving Project (LEaP) is looking for a family in the Yorkshire area to be interviewed by the BBC. If your child has autism and your family have experienced any of the issues outlined below, we would be keen to hear from you: Has your child with autism been refused a social care needs assessment by your local authority? If so, ...
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smiling little boy who got a good night's sleep thanks to the cerebra sleep service

Bedtime Settling and Night Time Waking

Cathy and her family were all struggling with the impact of her son's inability to settle at bedtime and his waking during the night. Harry, aged 2, was diagnosed with Mosaic Down’s Syndrome a couple of weeks after birth, and, last year, was also diagnosed with Avoidant and Restrictive Food Intake Disorder (ARFID). As a result of his Down’s Syndrome, Harry has a speech delay ...
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Donate Now

Your donations help fund our vital research and ensure that together we continue to provide the services that enrich the lives of so many children and their families FrequencyMonthlySingleMonthly donation amounts£3£10£15Single donation amount£15£25£35PhoneThis field is for validation purposes and should be left unchanged. Other Ways to Donate You can also donate by text or post. Text TOGETHER to 70470 to donate £5 Texts cost £5 ...
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Visors designed by CIC

Cerebra’s Innovation Centre supplies child friendly visors to schools

Lock down has meant that our Innovation Centre staff have been unable to work on their regular projects so they have used their skills and equipment to produce face visors to help others. Over the past couple of months the team have made 5000 visors for nursing homes, businesses and schools in the Swansea and Carmarthen areas. The team, led by Dr Ross Head, have ...
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Education - Cerebra charity for children with brain conditions

Update on Schools in England and Wales

The Government has removed plans for primary school children in England to return to school before the end of the summer break. The position now is that primary schools will be given the flexibility to decide whether or not children return to school before September. The Government has also announced that secondary schools in England may not fully reopen until at least September. If you ...
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Incredible Years Parenting Program

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial Williams et al This research paper was published in Autism Research as a result of work we fund at the University of Warwick. Find out more about The Incredible Years program.  
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