This is a summary of a research study that looked at lots of other studies into behavioural interventions for sleep problems to see if they were effective.

Our Project Guidelines explain how the Legal Entitlements and Problem-Solving (LEaP) Project works.

To read more about the research activities undertaken by the team, take a look at the End of Grant Report for January 2021-December 2023.

The annual report from the Core Research Programme at The Cerebra Centre for Neurodevelopmental Disorders.

Understanding and reducing sleep disorders in children with developmental delay lay summary.

The project team at Leeds has been engaged in identifying the pre-symptomatic detection of conditions and promoting preventative strategies, thus reducing the incidence and burden of childhood brain injury.

This annual report details the work by the University of Leeds LEaP Project.

In 2013 and 2014, the project team published compilations of the advice letters sent to families – the ‘Digests of Opinions’. They are a statement of the law and policy at that time.

This briefing has been prepared to help parents and carers of children with genetic syndromes understand how and why autism spectrum disorder or related characteristics might be seen in children with genetic syndromes and what this might mean for assessment and intervention.

This briefing has been prepared to help parents and carers of children with intellectual disability consider if, or when, a genetic diagnosis can be helpful in understanding their child’s needs.

This briefing has been written to help parents and carers of children with an intellectual disability to understand what self-injury is, what the causes are and which interventions are effective.

This student report explains how disabled people can find it difficult to afford to keep a pet at home because of the way councils calculate charges for social care support.

This student research report assesses how difficult it is for families to get an application form to apply for a disabled facilities grant in England.

Our student researchers at the School of Law, University of Leeds have published a report about the accuracy and accessibility of school transport information on local authority websites in England.

The project team has published a report which considers the benefits of investing in home adaptations for disabled children, including cost savings and improvements in wellbeing.

In 2016, the project team published a report on the accessibility and accuracy of ‘short breaks’ statements, following a survey of over 40% of English social services authorities.

Research by the University of Leeds Legal Entitlements and Problem-Solving (LEaP) Project into direct payments for disabled children and young people and their families.

The project team have published a report on the difficulties and delays faced by families of disabled children when using the local authorities complaints procedure in both England and Wales.

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. The programme of work in this area has been to better describe and understand autism in children with the most complex […]

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. Not long ago it was thought that people with the most severe intellectual disability and complex needs did not experience the […]

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. CNDD’s work on the emotion, cognition and behaviour of children and young people with rare genetic syndromes has been at the […]

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. Researcher’s experience was that sleep problems were common but neglected and that poor sleep may be related to both daytime behaviour […]

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. This is a summary of Cerebra funded resources provided by the Centre.

This report summarises the achievements of our Legal Entitlements and Problem-Solving Project between January 2016 and December 2019.

The research carried out by the team at Cerebra Family Research Group at the University of Warwick focuses on three big issues for families of children with brain conditions, specifically children with a learning disability and/or autism: Exploring whether the same family factors that influence the development of all children affect the development of children with […]

1000 Families Study, a UK multiwave cohort investigating the well-being of families of children with intellectual disabilities: cohort profile Richard P Hastings et al This research paper was published by BMJ Open as a result of the work we fund at University of Warwick. Published: January 2020

Measurement invariance of the Positive Gains Scale in families of children with and without disabilities Mikeda Jess et al This research paper was published in the Research in Developmental Disabilities journal as a result of the research we funded at University of Warwick. What is the Positive Gains Scale? The Positive Gain Scale (PGS; Pit-ten […]

Early Years Parenting Mediates Early Adversity Effects on Problem Behaviours in Intellectual Disability Totsika et al This research paper was published in the journal Child Development as a result of research we fund at the University of Warwick.

The Incredible Years Autism Spectrum and Language Delays Parent Program: A Pragmatic, Feasibility Randomized Controlled Trial Williams et al This research paper was published in Autism Research as a result of work we fund at the University of Warwick. Find out more about The Incredible Years program.  

This student project was developed in partnership with the Disability Law Service and the BBC. The project was influenced by the number of reports received from families explaining that their local authority had denied their child with autism an assessment of their needs.

Find out what our Legal Entitlements and Problem-Solving (LEaP) Project achieved in 2020.

Preventing prenatal brain damage with new tools for improved risk identification and therapy A report sharing the achievements and progress of our Foetal Research Programme made from 2020- 2023.

This report looks at the experiences of disabled children and their families of the process by which their needs for care and support are assessed by English local authority children’s services departments.

This annual report details the work undertaken by the Cerebra Network for Neurodevelopmental Disorders in 2024.

Why we should intervene early to support children with learning disabilities and their families, with examples from practice showing how it can be done.

The annual report report from the University of Leeds.

Interim implementation research report 1:  Disability and human rights training and guidance for disabled children’s assessors This report builds on 2021 research findings entitled ‘Institutionalising parent carer blame’: research that concluded that social care policies in England create a default position for those assessing disabled children, that assumes parental failings. The research that underpins this […]

This research report considers the prevalence and impact on families in England, Scotland and Wales of being accused of creating or exaggerating their child’s difficulties – an extreme form of parent carer blame. Instances of this kind are referred to as ‘Fabricated or Induced Illness’ (FII).

his research report concerns the way that the health services in England, Scotland and Wales respond to the continence care needs of disabled children. Its particular focus is on the provision of containment products (such as nappies, pads and ‘pull ups’). The research involved surveys of parents of disabled children, the making of freedom of information requests and website searches.

This report explores the phenomenon of Systems Generated Trauma: the severe harm that disabled children and their families experience through their interactions with public services. The research identifies a persistent pattern of public policies and practices, particularly within health, social care, and education systems, that are complex, dysfunctional and actively harmful. While these harms are […]

The Systems Generated Trauma Report Brief is a high-level summary of the full Systems Generated Trauma Report and includes key messages and case studies.