Research Papers

We have an extensive collection of research papers, research summaries and other related documents which provide specialist knowledge and are available to download.

  • A-Z of All Research Papers
  • Annual Report
  • Project Guidelines
  • Research Paper
  • Research Summary
  • Student Research Project

Behavioural Interventions

This is a summary of a research study that looked at lots of other studies into behavioural interventions for sleep problems to see if they were effective.

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Legal Entitlements and Problem-Solving (LEaP) Project

Our Project Guidelines explain how the Legal Entitlements and Problem-Solving (LEaP) Project works.

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University of Warwick Annual Report

To read more about the research activities undertaken by the team, take a look at this annual report.

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University of Birmingham Annual Report

The annual report from the Core Research Programme at The Cerebra Centre for Neurodevelopmental Disorders.

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University of Birmingham Sleep Annual Report

Understanding and reducing sleep disorders in children with developmental delay lay summary.

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University of Leeds Lay Summary

The project team at Leeds has been engaged in identifying the pre-symptomatic detection of conditions and promoting preventative strategies, thus reducing the incidence and burden of childhood brain injury.

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University of Leeds LEaP Annual Report

This annual report details the work by the University of Leeds LEaP Project.

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Digest of Opinions

In 2013 and 2014, the project team published compilations of the advice letters sent to families – the ‘Digests of Opinions’. They are a statement of the law and policy at that time.

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Autism in Genetic Syndromes

This briefing has been prepared to help parents and carers of children with genetic syndromes understand how and why autism spectrum disorder or related characteristics might be seen in children with genetic syndromes and what this might mean for assessment and intervention.

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Is the Diagnosis of a Genetic Disorder Important for Children with Intellectual Disability?

This briefing has been prepared to help parents and carers of children with intellectual disability consider if, or when, a genetic diagnosis can be helpful in understanding their child’s needs.

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Parent-to-Parent Support: Does It Help?

A research summary written by PenCRU and members of the PenCRU Family Faculty.

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Self Injurious Behaviour in Children with Intellectual Disability

This briefing has been written to help parents and carers of children with an intellectual disability to understand what self-injury is, what the causes are and which interventions are effective.

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Social Care Charges and Pet Care Costs

This student report explains how disabled people can find it difficult to afford to keep a pet at home because of the way councils calculate charges for social care support.

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Applying for a Disabled Facilities Grant

This student research report assesses how difficult it is for families to get an application form to apply for a disabled facilities grant in England.

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School Transport

Our student researchers at the School of Law, University of Leeds have published a report about the accuracy and accessibility of school transport information on local authority websites in England.

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Disabled Facilities Grants

The project team has published a report which considers the benefits of investing in home adaptations for disabled children, including cost savings and improvements in wellbeing.

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Short Breaks

In 2016, the project team published a report on the accessibility and accuracy of ‘short breaks’ statements, following a survey of over 40% of English social services authorities.

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Direct Payments for Disabled Children and Young People and their Families

Research by the University of Leeds Legal Entitlements and Problem-Solving (LEaP) Project into direct payments for disabled children and young people and their families.

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