Who we are
Cerebra is the national charity dedicated to improving the lives of children with neurodevelopmental conditions and their families. We do this through research, practical support, and innovative services that help families navigate everyday challenges.
Why join
Your lived experience matters. By joining the Lived Experience Advisory Group, you’ll help shape the work that directly affects families like yours. Your insight will influence Cerebra’s strategy, research priorities, services and policy work, ensuring everything we do is relevant, accessible and genuinely helpful.
Who we’re looking for
We welcome parents, carers, siblings and young people aged 16–25 who have lived experience of neurological conditions. You don’t need any formal qualifications, just a willingness to share your perspective and work alongside others.
You might be a good fit if you:
- Can listen to and learn from different experiences.
- Care about improving support for families of children with neurological conditions.
- Want to use your insight to help shape services, research and policy.
We value a wide range of experiences, whether that’s navigating health or social care systems, using assistive equipment, supporting a child with sleep difficulties, or finding creative ways to adapt everyday life. If your experience connects to Cerebra’s mission, we’d love to hear from you.
What you’ll do
- Review and shape strategy and services, research priorities and public-facing materials.
- Join 2–4 meetings a year (mainly online) and contribute by email between meetings.
- Take part in workshops, consultations and occasional grant or publication reviews.
- Provide occasional support for public communications, including offering commentary, reviewing key messages, or participating in interviews when appropriate.
Commitment and rewards
This voluntary role involves up to 25 hours per year. Meetings are mainly held by video call, with one possible in‑person meeting. Members will receive a fixed annual honorarium of £687.50, paid either twice yearly or as a single annual payment. All reasonable expenses are reimbursed.
How to apply
Please complete our short online application form (approx. 10–15 minutes). The form asks for basic contact details, information about your lived experience, and a few short answers so we can understand what you would bring to the group. If you need the form in an alternative format (Easy Read, Word, large print, audio) or help to complete it, contact us by email: [email protected].
Deadline
Applications close 5pm on 31 July 2026.
