Our Knowledge Transfer Project (Mental Health) Identified As Good Practice

Genetic Alliance UK has published the final report on the Cross Party Group on Rare, Genetic & Undiagnosed Conditions highlighting ...
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championing mental health

Championing Mental Health #IWD21

Research shows that children with rare genetic disorders often struggle with their mental health. Yet families have trouble finding helpful ...
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Project advisory group

Join our Project Advisory Group

Join our Project Advisory Group to help us improve mental health services for children with rare genetic developmental conditions. Background ...
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Improving the mental health of children with brain conditions

  We are launching a new project to help families of children with brain conditions access timely and appropriate mental ...
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Hand shake

Partnership pioneers better support services

We have forged a partnership with Cardiff University to improve services for families of children with debilitating brain disorders. The ...
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Boy with a female carer, smiling.

Knowledge Transfer Partnership success!

We are delighted to announce that we have been successful in our Knowledge Transfer Partnership (KTP) bid with the Institute ...
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