Researchers at the Cerebra Network have written the following guides for parents and family members:
Be Well Checklist
Sleep Tips Booklet
Autism in Genetic Syndromes - Cerebra Research Summary
Pain - Guide for Parents
Sensory Processing - Guide for parents
Self Injurious Behaviour in Children with Intellectual Disability Factsheet
Weighted Blanket for Sleep Difficulties in Children with Neurodevelopmental Conditions
Sensory processing hints & tips - General information
Sensory processing hints & tips - Sensory seeking
Sensory processing hints & tips - Hyper-reactivity
Sensory processing hints & tips - Hypo-reactivity
Researchers from the Cerebra Network contributed to and/or reviewed the following guides for parents and family members:
Cognitive Differences: Inflexibility and Impulsivity - Guide for Parents
Communication with Children with Severe or Profound Intellectual Disabilities - Guide for Parents
Emotional Outbursts - Guide for Parents
The FIND website is a great resource for family members and professionals alike to learn about rare genetic syndromes.
Many of the measures and assessment tools that have been developed and tested by the Cerebra Network researchers are freely available online: findresources.co.uk/professionals/login.
This year saw the launch of a brand new teacher training module to help educational professionals feel more confident in meeting the needs of students with genetic syndromes and intellectual disability: findteacherresources.co.uk.
