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Cerebra Sleep Project Study

What is the Cerebra Sleep Project looking at? The study is looking at how sleep difficulties and daytime behaviours interact in children with rare genetic syndromes. What taking part involves Parents/caregivers will first complete an online survey (30 minutes) and a telephone interview (90 minutes). Children will then wear a watch that monitors their sleep over a 10-day sleep assessment. During the sleep assessment, children ...
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cerebra annual conference

Cerebra Legal Entitlements and Problem-Solving Project Conference

On 18 October 2022, the University of Leeds School of Law hosted the Cerebra Legal Entitlements and Problem-Solving Project Conference: ‘Addressing commonly occurring social care difficulties encountered by disabled children and their families’. Over 150 participants attended the event online and in person, predominantly parent carers of disabled children as well as policy activists from Disabled Peoples and Carers organisations and statutory sector Children’s Services ...
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mum putting her daughter to bed

Sleep Seminars

Our online Sleep seminars are CPD accredited Zoom sessions led by Sleep Practitioners who will answer all your questions. Understanding and supporting children’s sleep for parents and carers of children with brain conditions aims to: build on your knowledge and understanding of sleep and what impacts/improves it increase your skills when addressing issues of settling, night waking, early rising and sleeping alone improve your confidence ...
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Learning Disabilities, Autism and Internet Safety - Cerebra the charity for children with brain conditions

Learning Disabilities, Autism and Internet Safety

A guide for parents All parents understand the importance of Internet safety. Our guide outlines some suggestions to help you limit the risk of your child having negative experiences online and understand what action can be taken if they do. This guide also suggests resources that will help your child get the most out of the Internet.
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Cerebra the charity for children with brain conditions-research work

Research

In the UK today there are around half a million children and young people with brain conditions that result in complex medical, educational and social support needs. Our research work across neurodevelopmental conditions gives us a unique perspective within the charity research sector allowing us to provide research-driven solutions and advice to those who need it most.
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Little boy looking through books, borrow ebooks from Cerebra.

Borrow ebooks

How to borrow ebooks and audiobooks If you are already a Cerebra library member and would like to use our BorrowBox library please email our librarian Jan at [email protected] to get your unique log in number. If you are not a library member, fill in the membership form to join now. Join our BorrowBox library to borrow any of our titles for free for 28 ...
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Cerebra library a child holding some books from the library.

Library

Our extensive library for parents and carers includes books on a wide variety of subjects that can help answer questions you may have about your child's condition. In our children's library we have books to be read with children or by older children. There is a mixture of fiction and non-fiction titles on all sorts of different topics including growing up and behaviour. If you ...
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Emotional and Mental Health

Whether it is being able to spot the signs of anxiety and pain in a child with complex needs or looking after yourself as a parent or carer, we have resources for both you and your child when you need help with your emotional and mental health. Our guide to anxiety gives an overview of anxiety and anxiety disorders in children with brain conditions and ...
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Cerebra the charity for children with brain conditions-research work

Our Research Partners

We aim to approach, fund and help to develop research in a unique way that can improve the quality of life for children with neurodevelopmental conditions and their families. Cerebra Network This programme will take forward previous research completed by the Cerebra Centre for Neurodevelopmental Disorders, led by Professor Chris Oliver at the University of Birmingham.  In the next phase of this research programme, the ...
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Understanding atypical patterns of autism in individuals with genetic syndromes associated with intellectual disability

Dr Jo Moss, Lecturer in Psychology at the University of Surrey, opened the February CEDAR seminar by sharing a story of a young man who had a rare genetic syndrome, but who also showed autism characteristics such as repetitive behaviours and a strong preference for routine from a young age but had never been diagnosed with autism. When he transitioned to college, his routine was ...
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Sleep Service

Sleep Advice Service

LEap

Legal Rights Service

Parent Guides

Parent Guides

Cerebra Innovation Centre

Cerebra Innovation Centre

Library

Toy and Book Library