Embrace Complex coalition carried out the Research Priority Setting to identify what areas of research are the most important to neurodivergent people, their families and carers, and all relevant professionals. The final outcome of the Research Priority Setting is the list of the Top 10 Priorities for Research on Neurodivergence.
Read the report: https://embracingcomplexity.org.uk/reports/top-10-research-priorities
Background to the Embracing Complexity Research Priority Setting:
- Research is key to developing an understanding of the day-to-day experiences of neurodivergent people and improving their lives. The increased public awareness of neurodiversity and the growing inclusion of the community in research create a huge opportunity for making a meaningful change. However, the majority of funded and published research into neurodevelopmental differences does not reflect the priorities of the community, which limits its potential to drive meaningful changes. [1]
- The purpose of the Embracing Complexity research is to identify barriers that lead to the social exclusion of neurodivergent people and effective ways of removing them. We hope that research that moves beyond the boundaries created by diagnostic categories and is informed by the priorities of the community will contribute to making society inclusive for neurodivergent people.
- We carried out the Research Priority Setting to identify what areas of research are the most important to neurodivergent people, their families and carers, and all relevant professionals.
- To our knowledge, this is the first research priority-setting focused on neurodivergence, which moves beyond the boundaries of neurodevelopmental diagnostic categories and includes people with different diagnostic statuses.
- The list of the Top 10 Research Priorities was created over three stages: Participatory Research with the Advisory Group, Research Priority Setting Survey, and Research Priority Setting Workshop.
[1] Embracing Complexity in Research: On Neurodevelopmental Conditions and Mental Health Website
