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Fish Tank Fun For Arthur

Our Innovation Centre designs and builds innovative, bespoke products to help disabled children discover and engage with the world around them. We love families getting in touch with an idea for something that will help their child. Arthur’s grandad, Sean, is a keen aquarist and noticed how Arthur was fascinated with watching the fish. He got in touch with our Innovation Centre to see if ...
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Law Commission seeks views on disabled children’s social care law

The Law Commission has published an important consultation paper on disabled children’s social care law in England.  The Commission has been looking at the current legal framework for getting help from social services and how it can be made fairer, simpler and more up to date. The Commission is inviting young people and families to express their views on its findings and recommendations. This is ...
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A selection of toys available from cerebra's lending library

Our Library Brings Mum And Daughter Time

Three year old Alexandra likes jumping about, climbing as high as she can, going to the zoo and her iPad. She’s not so keen on loud noises, different textures and not knowing what she’s doing. Her mum, Jessica, explains: “Alexandra’s condition affects our whole family as we have had to adapt our whole day, week, month into Alexandra’s routine and way of thinking. It can ...
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happy disabled boy painting with his family

RCPCH refuses to withdraw its 2021 Fabricated or induced illness (FII) guidance

Royal College of Paediatrics and Child Health refuses to withdraw its 2021 guidance concerning Fabricated or induced illness (FII) by carers. (1) On the 16 July 2024, we the undersigned researchers and non-governmental organisations wrote to the President and Chief Executive Officer of the Royal College of Paediatrics and Child Health and called for the College to withdraw, with immediate effect, the above publicly available ...
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What is Cerebral Palsy?

Cerebral palsy is a medical condition resulting in disorders of movement because of an injury to the brain. It is usually (but not always) caused by problems at birth or by a severe infection antenatally or in the neonatal period. Such an injury can, for example, affect muscle control and coordination, muscle tone, reflex, posture and balance. People who are affected by cerebral palsy may ...
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Louise and Fabs run 10k in the Festival of Inclusivity

A huge thank you to Louise Astill and Fabienne Cuthbert, from Fieldfisher for taking part in the Parallel Festival of Inclusivity for Cerebra on Sunday at Windsor. They've raised an incredible £390 - smashing their fundraising goal. We cannot thank them enough for all their efforts, particularly running through the wind and rain! "What a great day supporting Cerebra at the Parallel Windsor event! Fabienne ...
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Our Library Service Helps Mum Feel Less Isolated

"Archie's favourite things are people, music and sport. If he could choose how to spend a day, he would go with friends to a sporting event, stopping at a cafe on the way there and back and arriving in time to enjoy any live music on offer. Better still, he'd travel there on a bus or a train so he had lots of people to ...
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Cerebra library a child holding some books from the library.

New Books in the Library

Earlier in the year we decided to replace some of our older children’s books with more recent ones and they have just been added to our library. The library is free of charge and we cover the whole of the UK. For full information about our library please see the library page of the website. If you are not already a member and would like ...
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Cassidy and her Mum Dawn

Celebrating 15 Years of the GoTo Seat

We celebrate the 15 years of the GoTo seat with Dawn, whose request to our Innovation Centre led to the original design. It was later produced commercially by Leckey and as well as being available to purchase, it can now be found in supermarket trolleys across the country! The humble beginnings of the seat began back in 2009 when Dawn approached the Innovation Centre because ...
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Cerebra Sleep Project Study

What is the Cerebra Sleep Project looking at? The study is looking at how sleep difficulties and daytime behaviours interact in children with rare genetic syndromes. What taking part involves Parents/caregivers will first complete an online survey (30 minutes) and a telephone interview (90 minutes). Children will then wear a watch that monitors their sleep over a 10-day sleep assessment. During the sleep assessment, children ...
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