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MumFighter – Partnership brings powerful story to the stage

We are proud to have partnered with theatre company Grand Ambition to bring a play with a powerful message to the stage. MumFighter explores the obstacles faced by the mother of a disabled child, fighting for the support needed for them to reach their potential. It’s a moving, exhilarating and essential play about resilience, hope, and going the distance. It’s a story that resonated with ...
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Sleeping boy

Support and understanding from our Sleep Advice Service

Emma introduces us to her son Arthur and explains how our Sleep Advice Service was such a support. Tell us a bit about Arthur Arthur's favourite film is 'Inside Out' - he will watch this 4 or 5 times a day. His favourite emotion in the film is Disgust. I think this is because she dislikes broccoli and she is green which is his favourite ...
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Family with siblings

Fabricated or Induced Illness Research Report

The findings of a major research project concerning FII have been published today. This research report considers the prevalence and impact on families in England, Scotland and Wales of being accused of creating or exaggerating their child’s difficulties – an extreme form of parent carer blame. Instances of this kind are referred to as ‘Fabricated or Induced Illness’ (FII). A parent interviewed describes how she ...
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Making the call

Reasons to seek legal advice about a potential claim for compensation for a child with a brain injury or condition I know from my many years of acting for children with neurodevelopmental conditions, whether caused by poor care at birth, stroke, illness or trauma, that the prospect of seeking legal advice about a potential claim for compensation, on top of the demands of caring for ...
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Our Toy Library Brings Excitement And Wonder

Mum Victoria tells us their story: Can you tell us a little about your family? Our twins Charlie and Daisy are three years old. Daisy enjoying fibre optic lights Daisy is very sensory and loves music. Her favourite thing to do is sing and dance and make lots of noise. She is an adorable little girl who is full of fun and often very silly. ...
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What is HIE and how is it linked to Cerebral Palsy?

What is hypoxic-ischemic encephalopathy (HIE)? Hypoxic Ischaemic Encephalopathy, otherwise known as “HIE”, is a technical term describing brain damage caused by a lack of oxygen (hypoxia) and/or restriction of blood flow (ischaemia) to a baby which can result in neurological and developmental disorders. It is often associated with full term babies but can occur in premature babies too. There are 3 categories of HIE: mild, ...
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Bertie Learns How To Sleep On His Own

Mum Chante got in touch with our Sleep Advice Service for some help with her son’s separation anxiety and nightmares and to get him to sleep in his own bed. Chante tells us their story: My son Bertie is nine years old and a big fan of all things computing. He has his own gaming museum with retro consoles and loves to learn about the ...
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School transport, Cerebra help with families of children with brain conditions.

Accessing School Transport for Disabled Children – Progress

Local authorities have a duty to make travel arrangements for all eligible children. Cases referred to our Legal Entitlements and Problem-Solving Project (LEaP) have revealed common problems experienced by families in accessing school transport. Carys Hughes, LEaP Project Co-ordinator, reviews the progress the project has made to effect policy change, highlights the main issues and what we’ve learned about addressing common problems. What have we ...
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Teddy with his oxy-gem

Teddy is Going Places with his Oxy-gem!

Teddy was born healthy and well, although he suffered with what we thought was terrible reflux. When he was a year old I noticed he wasn’t breathing correctly, our local hospital couldn’t work out what was wrong and he was referred to a specialist team in London. After many tests a CT scan revealed that he had a very rare form of children’s interstitial lung ...
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The Surf Access Vehicle

Innovation Centre work on new surf products

Surf access vehicle: SAV One of the new products being pioneered by CIC this summer has been the new Surf Access Vehicle (SAV). Being developed in conjunction with Surf Tonic, a West Wales based surf school which specialises in surfing for people with various conditions, the SAV is aimed at transporting people from the car park to the water’s edge, and then into the water ...
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