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Toys To Entertain Asiya

"Asiya enjoys watching things moving around her and doesn't like the quiet. She enjoys watching other people especially children making lots of noise and running around and playing around her. As she has limited movement in her lower limbs she likes being entertained and can get bored of the same things quite easily. Asiya has spina bifida which affects her movement and also has hydrocephalus ...
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Family with siblings

Fabricated or Induced Illness Research Report

The findings of a major research project concerning FII have been published today. This research report considers the prevalence and impact on families in England, Scotland and Wales of being accused of creating or exaggerating their child’s difficulties – an extreme form of parent carer blame. Instances of this kind are referred to as ‘Fabricated or Induced Illness’ (FII). A parent interviewed describes how she ...
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Free webinar: Diagnostic overshadowing

Free webinar: Tuesday 21st November 6.00pm-7.30pm Diagnostic overshadowing presents a significant challenge for parents and carers of children with intellectual disability. Challenges and concerns may be attributed very broadly to their child’s intellectual disability or primary diagnosis, without careful consideration of alternative explanations that may be important for understanding the person’s individual support needs. In this webinar, we will consider the issue of diagnostic overshadowing ...
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Helping The Whole Family To Play Together

Our son Sam has Angelman Syndrome and needs assistance with all aspects of life. He is developmentally delayed, non-verbal, has mobility issues, cerebral vision impairment and epilepsy. Sam’s epilepsy is well controlled at present but he suffers from seizures when he is unwell. He has no sense of danger so needs constant supervision. Sam is an active, sociable 12 year old. He thrives on 1:1 ...
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Advice, Support and Information – A Family Story

“Our son J is three years old. He’s a little firecracker with a vibrant personality and he loves to play with toy cars, trains, planes, rockets, duplo and puzzles. He also loves water play so washing hands turns into lots of fun with water everywhere! J is autistic and has sensory processing difficulties. He has also been diagnosed with ARFID which means he does not ...
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Happy man in meeting

Practical approaches to resolving commonly occurring health and social care difficulties

John Furlong and Derek Tilley work within our Legal Entitlements and Problem-solving Project. They help families to understand what their legal rights are and what they can do if they fail to get the support they need. In this article Derek and John suggest some practical approaches to resolving commonly occurring health and social care difficulties. Get support Having support can be one of the ...
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School transport, Cerebra help with families of children with brain conditions.

Accessing School Transport for Disabled Children – Progress

Local authorities have a duty to make travel arrangements for all eligible children. Cases referred to our Legal Entitlements and Problem-Solving Project (LEaP) have revealed common problems experienced by families in accessing school transport. Carys Hughes, LEaP Project Co-ordinator, reviews the progress the project has made to effect policy change, highlights the main issues and what we’ve learned about addressing common problems. What have we ...
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positive family connections

Positive Family Connections – Latest News

Positive Family Connections is a new online 6 week programme for families who have a child with additional developmental needs (learning disability, autism, or both) aged between 8-13. Daniel Sutherland, a Cerebra funded PhD student working on the project, gives us a quick update on progress: https://youtube.com/shorts/yZS4drYjPx0?feature=share The project's aim is to enhance positive connections between family members. Our relationships with those closest to us ...
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Cerebra the charity for children with brain conditions-research work

The Health, Healthcare And Wellbeing Of Adults With Intellectual Disabilities

Tammy Rutter The dedication of Professor Mary McCarron and her team to inclusive research which brings about meaningful change for people with intellectual disabilities was evident throughout her CEDAR seminar series talk about IDS-TILDA. IDS-TILDA, a programme of research led by Professor McCarron at Trinity College Dublin, is the Intellectual Disability Supplement of the Irish Longitudinal Study on Aging. Now preparing for its fifth wave ...
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Little girl with paint on her hands.

Introducing Cerebra PhD Student Lauren Jenner

Lauren Jenner is a PhD student at the University of Surrey using novel methodologies to understand social abilities and autism in Prader-Willi syndrome and Down syndrome. I am currently in the third year of my PhD, funded by Cerebra. My research is on social abilities and autism characteristics in Prader-Willi syndrome (PWS), Down syndrome (DS) and non-syndromic autism (AUT). From October 2021 – January 2023, ...
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