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Is all this research actually doing anything?

This post is a summary of the conversation between the researchers and two undergraduate interns hosted by the Centre for Research in Intellectual and Developmental Disabilities (CIDD) for one month, June 2023. The content is the interns' own personal reflections on the conversation. Cerebra boasts an “extensive collection of research papers”, but is research actually influencing policy in the UK? Is research causing change or ...
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Advice, Support and Information – A Family Story

“Our son J is three years old. He’s a little firecracker with a vibrant personality and he loves to play with toy cars, trains, planes, rockets, duplo and puzzles. He also loves water play so washing hands turns into lots of fun with water everywhere! J is autistic and has sensory processing difficulties. He has also been diagnosed with ARFID which means he does not ...
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Tommy Lee wearing his helmet

Innovation Centre Create High tech horse riding helmet for young boy with unique head shape.

Tommy-Lee in action The Cerebra Innovation Centre (CIC), along with the help of BSI (British Standards Institution) have taken the challenge to help a young boy with autism and a unique head shape to fulfil one of his dreams. 16 year-old Tommy-Lee from Brighton wanted to go horse riding with his friends but his unique head shape prevented him from wearing a riding helmet. Without a ...
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Boy with a female carer, smiling.

Professor Richard Hastings – My Journey Into Research

Professor Richard Hastings Professor Richard Hastings  is Professor of Psychology and Education and Cerebra Chair of Family Research in CEDAR at the University of Warwick. He carries out research on various topics in the field of learning disability and autism, including: psychological problems in children and adults with autism or learning disability, families, and educational interventions. Richard is currently leading the Cerebra 1,000 Families Study. ...
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Understanding and reducing sleep problems for children with a genetic syndrome webinar review

A recording of the webinar is now available if you’d like to catch up in full. Introduction Professor Caroline Richards opened the webinar by introducing herself and the Cerebra Network for Neurodevelopmental Disorders. The Cerebra Network is a group of Psychologists and researchers that focus on doing research to improve the lives of children who have severe and complex needs and their families. Professor Richards ...
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School transport, Cerebra help with families of children with brain conditions.

Accessing School Transport for Disabled Children – Progress

Local authorities have a duty to make travel arrangements for all eligible children. Cases referred to our Legal Entitlements and Problem-Solving Project (LEaP) have revealed common problems experienced by families in accessing school transport. Carys Hughes, LEaP Project Co-ordinator, reviews the progress the project has made to effect policy change, highlights the main issues and what we’ve learned about addressing common problems. What have we ...
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New report launched: Investing in early intervention

Too often children with learning disabilities and their families are unable to access the early years support and services they need. Cerebra in collaboration with The Challenging Behaviour Foundation, Council for Disabled Children, University of Warwick and Mencap have today published a new report “Investing in early intervention”. Many families of disabled children struggle to get the right early support in the right place at ...
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premature baby

Prematurity

For most mothers pregnancy is a safe and straightforward process but for 1 in 5 unexpected complications can occur and are a major cause of childhood disability. The research we fund at the University of Leeds aims to improve the prediction of mums at risk of early delivery and to prevent it from happening so that fewer babies need neonatal intensive care and do not suffer ...
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Rhys Makes A Splash With Our Innovative Paddle Board

Teenager Rhys has a rare, progressive genetic condition which affects his extremities and his physical strength. While he has tried surfing, and enjoys it when the sea is calm, he finds that getting wet and cold is difficult for him. His mum, Adele, contacted our Innovation Centre to see if they could come up with a plan to help Rhys enjoy the ocean in a ...
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Cerebra the charity for children with brain conditions-research work

The Health, Healthcare And Wellbeing Of Adults With Intellectual Disabilities

Tammy Rutter The dedication of Professor Mary McCarron and her team to inclusive research which brings about meaningful change for people with intellectual disabilities was evident throughout her CEDAR seminar series talk about IDS-TILDA. IDS-TILDA, a programme of research led by Professor McCarron at Trinity College Dublin, is the Intellectual Disability Supplement of the Irish Longitudinal Study on Aging. Now preparing for its fifth wave ...
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