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Decision Making, Confidentiality and Sharing Information
A guide for parents As your child gets older you may find that your role in decision making in his or her care and support changes. Health and social care professionals start to encourage disabled children and young people to take a more active role in their own care and support as they mature. This guide gives you an overview of the law and policy ...
Read more Template Letters Scotland
There are different letter templates for England, Wales and Scotland and they cover a numbers of topics. They aim to make your letters more effective.
Read more Preventing Neonatal Brain Injury and Childhood Disability
From 2020 to 2024, Cerebra supported a research initiative at the University of Leeds aimed at preventing neonatal brain injuries, which can have lifelong impact on children’s development. These injuries are often associated with pregnancy complications such as foetal growth restriction (FGR), pre-eclampsia (PET), and preterm birth (PTB), conditions that affect up to 20% of pregnancies and can lead to irreversible outcomes. The program focused ...
Read more Specific phobia in children with learning disabilities
In this seminar, Professor Kylie Gray presented the findings of the study titled “Specific phobia in children with learning disabilities (SPIRIT)”. Professor Kylie Gray is the Director of Research and Director of Postgraduate Research at the Centre for Research in Intellectual and Developmental Disabilities, University of Warwick. She has over 25 years of research and clinical experience in intellectual and developmental disability autism assessment, diagnosis, ...
Read more Legal Pathways for Families Coping with Child Brain Injuries from Medical Negligence
Navigating the aftermath of a child’s brain injury caused by medical negligence is a challenging and emotional experience for families. Understanding the legal options available can feel overwhelming, but seeking guidance from experts can provide clarity and reassurance. To explore this critical topic, we spoke with Leanne Devine, a specialist child brain injury solicitor at Fletchers Solicitors, to shed light on the unique complexities of ...
Read more Developing The Next Generation Of Researchers – Daniel Sutherland
"My name is Daniel Sutherland, and I have spent the last three years completing a PhD funded by Cerebra and the University of Warwick. My research has focused on the development and evaluation of a new programme called Positive Family Connections for families of children with learning disabilities or who are autistic. Positive Family Connections aims to enhance family relationships and well-being and involved six ...
Read more Independence for Arlo
Two year old Arlo likes going on walks, playing with his blocks and reading books. He is a happy little boy and enjoys watching cars in the street. His mum Lauren explains what led her to get in touch with our Innovation Centre for help. “Arlo has a condition called RTD type 3 which affects the nerves in his body causing profound deafness, muscle weakness ...
Read more Covid 19 and Digital Inclusion
This seminar, delivered by Dr. Sue Caton, explores the findings of the study titled "Coronavirus and People with Learning Disabilities Study." Dr. Caton holds the position of Research Fellow in the Department of Social Care and Social Work within the Faculty of Health and Education at Manchester Metropolitan University. Her research primarily focuses on qualitative social research, with an emphasis on the experiences of individuals ...
Read more Inaccessible, unacceptable and unaccountable: the provision of paediatric continence supplies in England, Wales and Scotland.
Charities issue an urgent call for action, following the publication of a major new research report into the provision of paediatric continence supplies. The report reveals that serious failings by health and social care bodies are having a long-term detrimental impact on the lives of disabled children and their families. The report, published by Cerebra, the UK charity working for children with brain conditions, the ...
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