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Understanding atypical patterns of autism in individuals with genetic syndromes associated with intellectual disability

Dr Jo Moss, Lecturer in Psychology at the University of Surrey, opened the February CEDAR seminar by sharing a story of a young man who had a rare genetic syndrome, but who also showed autism characteristics such as repetitive behaviours and a strong preference for routine from a young age but had never been diagnosed with autism. When he transitioned to college, his routine was ...
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a woman having a 3d ultrasound scan

Changing Lives Through Research

Babies born prematurely have a significantly higher risk of developing a life-changing brain condition Half a million children in the UK have a brain condition that can make learning, playing and simply experiencing the world a huge challenge. We know research can change lives. That's why we're dedicated to supporting high quality research, utilising the findings to provide evidence based information and support to children ...
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Alex rides the waves

The team at the Cerebra Innovation Centre are dedicated to designing and making bespoke products that enrich a child’s life, giving them new experiences that wouldn’t otherwise be possible. Created in partnership with Roger Cooper, our surfboard was designed for children with limited mobility and brain conditions. It allows wheelchair-bound adrenaline junkies to get out of their chairs and onto the water. The tandem design ...
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Inaccessible, unacceptable and unaccountable: the provision of paediatric continence supplies in England, Wales and Scotland.

This research report concerns the way that the health services in England, Scotland and Wales respond to the continence care needs of disabled children. Its particular focus is on the provision of containment products (such as nappies, pads and ‘pull ups’). The research involved surveys of parents of disabled children, the making of freedom of information requests and website searches.
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Information and support for parents of a child recently diagnosed with a genetic condition

Understanding your child’s diagnosis can help you better identify their individual needs and get support. We’ve put together some suggestions about where you can access information and support in the community.
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After diagnosis: what now?

A factsheet for parents This factsheet has been prepared as a starting point for parents of children that have just been diagnosed with a brain condition. It aims to provide an overview of the resources and information they need to get advice, help and support for their family. Key points Understanding a diagnosis Social care Financial aid Education Support How Cerebra can help Useful; contacts ...
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Tiny Baby Hat Knitting Pattern

As part of our Fighting Chance campaign, we'll be knitting hats for premature babies - Cerebra style! Our tiny hat patterns are specially sized for tiny babies who need a little extra help to stay warm. We’ve made a chart for our spark but feel free to get creative! Basic hat pattern This is a very simple pattern so it’s perfect for beginners or as a ...
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Social Care in England - Cerebra the charity for children with brain conditions

Social Care in England

A guide for parents As the parent or carer of a disabled child you need to know the support you are entitled to in getting help for your child's social care needs. Our guide outlines exactly what social care the local authorities in England are responsible for and the support that is available to you as a parent or carer. We have also created a ...
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Money Matters - Cerebra the charity for children with brain conditions

Money Matters

A guide for parents This guide is for parents of disabled children who want to know what financial help may be available for them. It also outlines the arrangements they may need to put in place to manage their children’s finances from birth and as they get older.
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Applying for a Disabled Facilities Grant

This student research report assesses how difficult it is for families to get an application form to apply for a disabled facilities grant in England.
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