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Impact Report 2024

At Cerebra, we are driven by a simple yet powerful belief: every child with a brain condition deserves to thrive. Everything we do is focused on supporting children, families, and carers to achieve this goal. Over the past year, thanks to the generosity of our supporters, we have continued to transform lives. Our latest Impact Report highlights just some of the initiatives we have delivered ...
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Support for Natasha and Riley

We were delighted to receive this feedback from mum Natasha who sought help from our Sleep Service for her and son Riley. Three-year-old Riley loves trains, cars, diggers and farm machinery. His favourite things to do are being outside, engaging in sensory activities and organising his toys. But Riley dislikes change in his routine and busy or loud environments. Natasha explains why she got in ...
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Free webinar: Understanding neurodiversity in communication and social abilities in children with intellectual disabilities

Free lunchtime webinar: Wednesday 14th May – 12.30pm – 2pm For parents, carers and professionals that support families. People with intellectual disabilities are an incredibly diverse group, each with their own strengths and challenges in communication and social abilities, which can either support their wellbeing and community participation or create barriers that limit their opportunities. However, this diversity is not always fully recognised, leading to ...
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Girl on potty

Inaccessible, unacceptable and unaccountable: the provision of paediatric continence supplies in England, Wales and Scotland.

Charities issue an urgent call for action, following the publication of a major new research report into the provision of paediatric continence supplies. The report reveals that serious failings by health and social care bodies are having a long-term detrimental impact on the lives of disabled children and their families. The report, published by Cerebra, the UK charity working for children with brain conditions, the ...
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A treasure chest of resources in our library

George is 7 years old. He is a whirlwind of happiness, he always has a smile on his face and leaves a happy trail in his wake. He loves the outdoors and in all weathers, the muddier the better in his eyes. He loves to run rather than walk anywhere so we have to be nimble in pursuit! He loves anything that spins and for ...
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Understanding and reducing sleep problems for children with a genetic syndrome webinar review

A recording of the webinar is now available if you’d like to catch up in full. Introduction Professor Caroline Richards opened the webinar by introducing herself and the Cerebra Network for Neurodevelopmental Disorders. The Cerebra Network is a group of Psychologists and researchers that focus on doing research to improve the lives of children who have severe and complex needs and their families. Professor Richards ...
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Fish Tank Fun For Arthur

Our Innovation Centre designs and builds innovative, bespoke products to help disabled children discover and engage with the world around them. We love families getting in touch with an idea for something that will help their child. Arthur’s grandad, Sean, is a keen aquarist and noticed how Arthur was fascinated with watching the fish. He got in touch with our Innovation Centre to see if ...
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A selection of toys available from cerebra's lending library

Our Library Brings Mum And Daughter Time

Three year old Alexandra likes jumping about, climbing as high as she can, going to the zoo and her iPad. She’s not so keen on loud noises, different textures and not knowing what she’s doing. Her mum, Jessica, explains: “Alexandra’s condition affects our whole family as we have had to adapt our whole day, week, month into Alexandra’s routine and way of thinking. It can ...
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Our Library Service Bringing Happiness

Vicky is mum to eight-year-old twins Isaac and Enoch, who both have disabilities. The boys love football and vehicles, reading, watching videos and playing with friends. Life is very busy, and Vicky’s daily routine revolves around taking care of the boys’ needs. Vicky explains that her elder son has very stiff hands and arms and isn’t able to use his hands to play with traditional ...
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happy disabled boy painting with his family

RCPCH refuses to withdraw its 2021 Fabricated or induced illness (FII) guidance

Royal College of Paediatrics and Child Health refuses to withdraw its 2021 guidance concerning Fabricated or induced illness (FII) by carers. (1) On the 16 July 2024, we the undersigned researchers and non-governmental organisations wrote to the President and Chief Executive Officer of the Royal College of Paediatrics and Child Health and called for the College to withdraw, with immediate effect, the above publicly available ...
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Toy and Book Library