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Book review: Jayben and the Golden Torch by Thomas Leeds

I have just been on an adventure with Jayben. Where do people go when they have a seizure? Jayben goes into a magical world of talking pets, free-dreams and ribbons for money. He finds himself in the ancient world of The Dreamers, although he is an earth world boy he is also the prophesised 9th Dreamer, destined to carry the Golden Torch and to search ...
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Help To Navigate Social Care

John Furlong from our Legal Rights Service explains how we guided and supported Sarah through the complex and traumatic process of obtaining a social care assessment for her son Adam and a parent carers' needs assessment for herself. "Sarah contacted us because she was having difficulty getting social care support for her 9 year-old son Adam, who had a diagnosis of autism with aspects of ...
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happy disabled boy painting with his family

Social Care and Parent Carer’s Needs Assessment

Our Legal Rights Service provides families of children with brain conditions with help when facing difficulties accessing support services they are entitled to. Derek Tilley, Senior Development Officer on our LEaP Project, explains how we recently helped Hilary and her son Keith: "Hilary, her husband and son Keith had moved to a neighbouring Welsh local authority for financial reasons. Keith has a metabolic disorder which ...
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Toys To Entertain Asiya

"Asiya enjoys watching things moving around her and doesn't like the quiet. She enjoys watching other people especially children making lots of noise and running around and playing around her. As she has limited movement in her lower limbs she likes being entertained and can get bored of the same things quite easily. Asiya has spina bifida which affects her movement and also has hydrocephalus ...
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Fidgeting Fun For Faith

Mum Louise introduces us to her daughter Faith and explains how borrowing a Fidget Kit from our Toy Library has helped meet some of her sensory needs. "Faith is 5 years old and loves creative play and regularly does role playing with her teddies and dolls. Faith is also very hyperactive and likes any activities that involve movement such as her trampoline at home. Faith ...
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Legal

Written evidence submitted by the Legal Entitlements and Problem Solving (LEaP) Project, Cerebra

We have published our evidence to The Education Committee, which is assessing the current system of children's social care in England.  We said there is a lack of support for disabled children and their families, the government should introduce national eligibility criteria in order to access support, ' Working Together' guidance should be reformed to require local authorities to have separate assessment procedures for disabled ...
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Case Management following an acquired brain injury

What is case management? Paediatric Case Management is the planning and coordination of therapeutic, medical, and social care to promote your child’s recovery and comprehensive management of their needs, Case management brings together the various specialities needed to achieve the best possible outcome for your child’s recovery such as Medical management Speech and language therapy Occupational therapy Physiotherapy Psychological therapy Accommodation, Transport Education, Employment, Finances, ...
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Finding Calm At Bedtime

Four-year-old B has sensory issues as well as developmental issues, particularly around communication. It was taking B a long time to fall asleep and he was often waking during the night, taking a long time to settle. B’s mum told us “Our Paediatrician advised us to contact Cerebra for support with B’s sleep. He had already been prescribed medication to help but there were side ...
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Helping The Whole Family To Play Together

Our son Sam has Angelman Syndrome and needs assistance with all aspects of life. He is developmentally delayed, non-verbal, has mobility issues, cerebral vision impairment and epilepsy. Sam’s epilepsy is well controlled at present but he suffers from seizures when he is unwell. He has no sense of danger so needs constant supervision. Sam is an active, sociable 12 year old. He thrives on 1:1 ...
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a woman hugging two small children

Seminar Review – Stigma and People with a Learning Disability

The first CEDAR seminar of 2023 was by Katrina Scior, Professor of Clinical Psychology and Stigma Studies at University College London. Professor Scior’s talk focused on stigma towards people with a learning disability (otherwise referred to as an intellectual disability). She discussed the many ways in which stigma negatively impacts the lives of people with a learning disability and her team’s important research on how ...
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