Family wellbeing

Here you’ll find resources on a range of topics that are important for child and family wellbeing when a child has an intellectual disability and/or genetic condition.

happy disabled boy painting with his family

Family wellbeing

Here you’ll find resources on a range of topics that are important for child and family wellbeing when a child has an intellectual disability and/or genetic condition.

The Behaviour Checklist

Our Behaviour Checklist is the newest resource to come out of our work at the Cerebra Network for Neurodevelopmental Disorders (CNND). It links together many of our existing resources to help parents of children with complex needs.

It's a list of the things that are important to assess when thinking about the behaviour and wellbeing of children and adults with severe learning disability and complex needs. Using the list ensures that these things are not missed or forgotten.

Understanding child behaviour

Sensory processing

Pain

Cognitive difference

Challenging behaviour

Communication

Sleep

Emotional outbursts

Anxiety

Self-Injury

Child mental health and wellbeing

Mental Health in Children with Rare Genetic Conditions

Improving the wellbeing of young children with learning disabilities

Parent carer wellbeing

Wellbeing guide

Wellbeing plan

Webinar - Fathers of disabled children: supporting their wellbeing

September 2022 - Led by Dr Emma Langley (Assistant Professor, University of Warwick), alongside members of the Fathers Active In Research (FAIR) group.

Further resources and support for rare genetic syndromes

The FIND website aims to improve the quality of life for people with rare genetic syndromes by sharing knowledge in an accessible way; reducing the amount of time it takes research findings to reach parents, carers and professionals.

Sleep Service

Sleep Advice Service

LEap

Legal Rights Service

Parent Guides

Parent Guides

Cerebra Innovation Centre

Cerebra Innovation Centre

Library

Toy and Book Library