Urgent Call for Action: Support Disabled Children’s Right to Dignified, Accessible Continence Care

19 February 2025

We’re asking for your support to demand the immediate development of national, fit-for-purpose guidelines for paediatric continence services for disabled children.

Urgent Call for Action: Support Disabled Children’s Right to Dignified, Accessible Continence Care

19 February 2025

We’re asking for your support to demand the immediate development of national, fit-for-purpose guidelines for paediatric continence services for disabled children.

Nappies in basket

Our groundbreaking new report reveals a shocking failure by health and social care bodies across England, Wales, and Scotland to provide adequate paediatric continence supplies for disabled children. The lack of appropriate, accessible services is causing severe emotional, financial, and social consequences for families, and these disabled children are being denied their basic right to dignity and inclusion.

With 900,000 children in the UK suffering from bladder and bowel dysfunction, many disabled children face overwhelming challenges due to inadequate continence care. This situation is not just unfair; it’s a violation of human rights. It’s time for the Governments in England, Wales, and Scotland to take urgent action to rectify this glaring oversight and provide disabled children with the care and support they desperately need.

We’re asking for your support to demand:

  • Immediate development of national, fit-for-purpose guidelines for paediatric continence services for disabled children.
  • Comprehensive, non-discriminatory support to ensure disabled children’s dignity, health, and inclusion in school and society.
  • Urgent action to address the financial burdens placed on families who are forced to pay out-of-pocket for basic care supplies.

Join the call to action:

  • Read the full report and see the unacceptable impact this failure has on disabled children and their families.
  • Add your name to our petition below.
  • Contact your local MPs, AMs or MSPs and advocate for immediate policy changes. Download a template letter here.

This is a call for every disabled child’s right to a childhood with dignity. Let’s ensure these children’s needs are met.

Together, we can make this right.

Sign our petition here:

We stand together with Cerebra, Leeds University, and the Parent and Carer Alliance in demanding that UK Governments take swift, decisive action to fix this crisis with paediatric continence supplies for disabled children and ensure no disabled child is left behind.

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9 thoughts on “Urgent Call for Action: Support Disabled Children’s Right to Dignified, Accessible Continence Care”

  1. Thank you for all the work you do in raising important issues and supporting children and families living with challenging neurological conditions.

  2. Thank you for fighting the good fight for children with additional needs and challenges, and in support of the demands faced daily by their parents.

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