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What is HIE and how is it linked to Cerebral Palsy?

What is hypoxic-ischemic encephalopathy (HIE)? Hypoxic Ischaemic Encephalopathy, otherwise known as “HIE”, is a technical term describing brain damage caused by a lack of oxygen (hypoxia) and/or restriction of blood flow (ischaemia) to a baby which can result in neurological and developmental disorders. It is often associated with full term babies but can occur in premature babies too. There are 3 categories of HIE: mild, ...
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Bertie Learns How To Sleep On His Own

Mum Chante got in touch with our Sleep Advice Service for some help with her son’s separation anxiety and nightmares and to get him to sleep in his own bed. Chante tells us their story: My son Bertie is nine years old and a big fan of all things computing. He has his own gaming museum with retro consoles and loves to learn about the ...
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Cerebra webinar review – Fathers of disabled children: supporting their wellbeing

Led by Dr Emma Langley (Assistant Professor, University of Warwick), alongside members of the Fathers Active In Research (FAIR) group A recording of the webinar is now available if you’d like to catch up in full. Introduction Dr Langley opened her talk by introducing her area of work, which focuses on conducting applied research that has a positive impact on the everyday lives of disabled ...
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Teddy with his oxy-gem

Teddy is Going Places with his Oxy-gem!

Teddy was born healthy and well, although he suffered with what we thought was terrible reflux. When he was a year old I noticed he wasn’t breathing correctly, our local hospital couldn’t work out what was wrong and he was referred to a specialist team in London. After many tests a CT scan revealed that he had a very rare form of children’s interstitial lung ...
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Securing Direct Payments To Transform A Family’s Life

Direct Payments are intended to give families more control over the care and support services their children need and are entitled to. However, for some families securing these payments from their local authority can be a challenge. Mum, Francesca, got in touch to explain her family’s situation, how our Legal Rights Service helped her through a long and complex process and the difference it has ...
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Skylar

Skylar Steps Up to the Challenge!

11 year-old Skylar is taking on a 125,000 steps challenge throughout May. Her Dad, Mark, told us all about why Skylar is taking up this incredible challenge. “Skylar decided to embark on a personal fitness goal throughout May and thought it would be nice to help others along the way so started discussing a step challenge for charity with her mother and that's how this ...
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Diagnostic Overshadowing Webinar Review

A recording of the webinar is now available at the end of this article if you’d like to catch up in full. Introduction Dr Jo Moss opened the webinar by placing our focus on the importance of prioritising the long term health and well-being of children and young people with a genetic condition associated with intellectual disability. Research has shown that having a genetic condition ...
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Working with families to find sleep solutions

Sami explains how his family were able to adapt suggestions from one of our Sleep Practitioners leading to a better night's sleep for the whole family: "Six year old Viktor is an Autistic but very smart and energetic little lovely boy. He likes to play all day; he will not settle not even for a second. Like any other child, he likes pizza, sweets, going ...
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Making the call

Reasons to seek legal advice about a potential claim for compensation for a child with a brain injury or condition I know from my many years of acting for children with neurodevelopmental conditions, whether caused by poor care at birth, stroke, illness or trauma, that the prospect of seeking legal advice about a potential claim for compensation, on top of the demands of caring for ...
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Case Management following an acquired brain injury

What is case management? Paediatric Case Management is the planning and coordination of therapeutic, medical, and social care to promote your child’s recovery and comprehensive management of their needs, Case management brings together the various specialities needed to achieve the best possible outcome for your child’s recovery such as Medical management Speech and language therapy Occupational therapy Physiotherapy Psychological therapy Accommodation, Transport Education, Employment, Finances, ...
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