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Sleeping boy

Support and understanding from our Sleep Advice Service

Emma introduces us to her son Arthur and explains how our Sleep Advice Service was such a support. Tell us a bit about Arthur Arthur's favourite film is 'Inside Out' - he will watch this 4 or 5 times a day. His favourite emotion in the film is Disgust. I think this is because she dislikes broccoli and she is green which is his favourite ...
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Our Toy Library Brings Excitement And Wonder

Mum Victoria tells us their story: Can you tell us a little about your family? Our twins Charlie and Daisy are three years old. Daisy enjoying fibre optic lights Daisy is very sensory and loves music. Her favourite thing to do is sing and dance and make lots of noise. She is an adorable little girl who is full of fun and often very silly. ...
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What is HIE and how is it linked to Cerebral Palsy?

What is hypoxic-ischemic encephalopathy (HIE)? Hypoxic Ischaemic Encephalopathy, otherwise known as “HIE”, is a technical term describing brain damage caused by a lack of oxygen (hypoxia) and/or restriction of blood flow (ischaemia) to a baby which can result in neurological and developmental disorders. It is often associated with full term babies but can occur in premature babies too. There are 3 categories of HIE: mild, ...
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Bertie Learns How To Sleep On His Own

Mum Chante got in touch with our Sleep Advice Service for some help with her son’s separation anxiety and nightmares and to get him to sleep in his own bed. Chante tells us their story: My son Bertie is nine years old and a big fan of all things computing. He has his own gaming museum with retro consoles and loves to learn about the ...
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Teddy with his oxy-gem

Teddy is Going Places with his Oxy-gem!

Teddy was born healthy and well, although he suffered with what we thought was terrible reflux. When he was a year old I noticed he wasn’t breathing correctly, our local hospital couldn’t work out what was wrong and he was referred to a specialist team in London. After many tests a CT scan revealed that he had a very rare form of children’s interstitial lung ...
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Navigating Life After a Brain Injury: The Power of Rehabilitation and Collaboration

Equipment and Rehabilitation: Enhancing Quality of Life  Access to the right equipment and rehabilitation can significantly improve quality of life and independence for children with brain injuries. Here are some examples of aids and equipment that can make a difference: Mobility Aids: Wheelchairs, walkers, and standing frames can help individuals move around more easily and safely. Communication Devices: Speech-generating devices and communication boards can assist ...
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Securing Direct Payments To Transform A Family’s Life

Direct Payments are intended to give families more control over the care and support services their children need and are entitled to. However, for some families securing these payments from their local authority can be a challenge. Mum, Francesca, got in touch to explain her family’s situation, how our Legal Rights Service helped her through a long and complex process and the difference it has ...
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Skylar

Skylar Steps Up to the Challenge!

11 year-old Skylar is taking on a 125,000 steps challenge throughout May. Her Dad, Mark, told us all about why Skylar is taking up this incredible challenge. “Skylar decided to embark on a personal fitness goal throughout May and thought it would be nice to help others along the way so started discussing a step challenge for charity with her mother and that's how this ...
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Diagnostic Overshadowing Webinar Review

A recording of the webinar is now available at the end of this article if you’d like to catch up in full. Introduction Dr Jo Moss opened the webinar by placing our focus on the importance of prioritising the long term health and well-being of children and young people with a genetic condition associated with intellectual disability. Research has shown that having a genetic condition ...
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Working with families to find sleep solutions

Sami explains how his family were able to adapt suggestions from one of our Sleep Practitioners leading to a better night's sleep for the whole family: "Six year old Viktor is an Autistic but very smart and energetic little lovely boy. He likes to play all day; he will not settle not even for a second. Like any other child, he likes pizza, sweets, going ...
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