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happy disabled boy painting with his family

RCPCH refuses to withdraw its 2021 Fabricated or induced illness (FII) guidance

Royal College of Paediatrics and Child Health refuses to withdraw its 2021 guidance concerning Fabricated or induced illness (FII) by carers. (1) On the 16 July 2024, we the undersigned researchers and non-governmental organisations wrote to the President and Chief Executive Officer of the Royal College of Paediatrics and Child Health and called for the College to withdraw, with immediate effect, the above publicly available ...
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Our Library Service Helps Mum Feel Less Isolated

"Archie's favourite things are people, music and sport. If he could choose how to spend a day, he would go with friends to a sporting event, stopping at a cafe on the way there and back and arriving in time to enjoy any live music on offer. Better still, he'd travel there on a bus or a train so he had lots of people to ...
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Cerebra library a child holding some books from the library.

New Books in the Library

Earlier in the year we decided to replace some of our older children’s books with more recent ones and they have just been added to our library. The library is free of charge and we cover the whole of the UK. For full information about our library please see the library page of the website. If you are not already a member and would like ...
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boy in a wheelchair with a carer stood behind him

Improving The Health And Wellbeing Of People With Intellectual Disabilities

Professor Cairns is Director of the Scottish Learning Disabilities Observatory, and Professor of Health and Neurodevelopmental Conditions in the School of Health and Wellbeing, at the University of Glasgow. In this seminar, held at the Centre for Research in Intellectual and Developmental Disabilities (CIDD) at the University of Warwick on 25th April 2024, Professor Cairns outlined some of the work of the Scottish Learning Disabilities ...
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Cassidy and her Mum Dawn

Celebrating 15 Years of the GoTo Seat

We celebrate the 15 years of the GoTo seat with Dawn, whose request to our Innovation Centre led to the original design. It was later produced commercially by Leckey and as well as being available to purchase, it can now be found in supermarket trolleys across the country! The humble beginnings of the seat began back in 2009 when Dawn approached the Innovation Centre because ...
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Traumatic Brain Injuries in Children: Causes and Prevention

What is a Traumatic Brain Injury? Traumatic brain injury (‘TBI’) is an injury to the head caused externally by a blow, jolt, or penetrating object that disrupts the normal functioning of the brain. The effects of such trauma to the brain in childhood may not always be apparent straight away, but they can be life-long and severe if left untreated. Most children recover from a TBI with no lasting damage. In extreme cases, ...
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Legal

Written evidence submitted by the Legal Entitlements and Problem Solving (LEaP) Project, Cerebra

We have published our evidence to The Education Committee, which is assessing the current system of children's social care in England.  We said there is a lack of support for disabled children and their families, the government should introduce national eligibility criteria in order to access support, ' Working Together' guidance should be reformed to require local authorities to have separate assessment procedures for disabled ...
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Without Cerebra’s Sleep Service I don’t know where we’d be

"Without the help of Cerebra’s Sleep Service I don't know where we would be. As a family we were all getting very desperate and it's hard to think straight when you can't sleep – you don’t know what's best anymore. Our daughter is 4 years old and has difficulty communicating and understanding the world around her. She needs lots of support all the time, with ...
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Project advisory group

The feasibility and effectiveness of tailored behavioural sleep interventions for children with neurodevelopmental conditions.

Researchers at Aston University are working in partnership with Cerebra to understand how practical and effective behavioural sleep interventions are for children with neurodevelopmental conditions. This project will examine whether tailored sleep interventions improve children’s sleep, daytime behaviour, and caregiver wellbeing. Why do we need a project examining sleep in children with neurodevelopmental conditions? Children with neurodevelopmental conditions often experience poor sleep which can negatively ...
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Free webinar: Diagnostic overshadowing

Free webinar: Tuesday 21st November 6.00pm-7.30pm Diagnostic overshadowing presents a significant challenge for parents and carers of children with intellectual disability. Challenges and concerns may be attributed very broadly to their child’s intellectual disability or primary diagnosis, without careful consideration of alternative explanations that may be important for understanding the person’s individual support needs. In this webinar, we will consider the issue of diagnostic overshadowing ...
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