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Legal

A response to the consultation: Reviews of Education, Health and Care plans: proposed timescales

Response to the government's consultation to increase the time a local authority has to issue draft amendments to an EHC plan following an annual review meeting from four weeks to eight weeks and other proposals, which concluded on 12 August 2022. Introduction 1  This response is prepared by Cerebra Legal Entitlements and Problem Solving (LEaP) Project. 2  The LEaP Project is an innovative problem-solving project ...
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Nappies

Our LEaP project helps Rhiannon get the continence supplies she needs

Our LEaP Project helps Rhiannon get the continence supplies she needs and our template letter could help you to write to your local health board. Our Legal Entitlements and Problem-Solving (LEaP) Project supports families who are struggling to get access to health or social care services. Louise contacted us for help with getting continence products for her daughter, Rhiannon, who’s 9 years old and has ...
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Toys To Entertain Asiya

"Asiya enjoys watching things moving around her and doesn't like the quiet. She enjoys watching other people especially children making lots of noise and running around and playing around her. As she has limited movement in her lower limbs she likes being entertained and can get bored of the same things quite easily. Asiya has spina bifida which affects her movement and also has hydrocephalus ...
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Relay Your Way: 2500km. 33 Days. One Mission.

From June 3rd to July 6th, we’re running, cycling, swimming, surfing, and wheeling 2,500km across the UK to ensure no child is left on the sidelines. 👉 1.5 million children in the UK have a disability 👉 3 in 4 miss out on sport 💡 What if no one ever had to ask, “Can I take part?” That’s why Relay Your Way exists – an inclusive relay ...
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Scoot Horse

Our Scoot Horse brings joy and laughter

“Our daughter is 6 years old. She has Cerebral Palsy and loves movement - swings, scooter boards, her specialist bike. She also loves music and books. With her now being taller and older a lot of equipment is not available for her anymore. When she was tiny, we could get away with some high street options, but now she just misses out normally. It is ...
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Cerebra Sleep Project Study

What is the Cerebra Sleep Project looking at? The study is looking at how sleep difficulties and daytime behaviours interact in children with rare genetic syndromes. What taking part involves Parents/caregivers will first complete an online survey (30 minutes) and a telephone interview (90 minutes). Children will then wear a watch that monitors their sleep over a 10-day sleep assessment. During the sleep assessment, children ...
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Introducing Wizzybug – the fun way to get around for children with physical disabilities

The Wizzybug is an innovative powered wheelchair modelled on the ‘Little Tikes’ car, aimed at younger children with limited mobility up to 20kg. Designability is a charity that enables disabled people to live with greater independence, much like the aims of Cerebra. They have designed and made numerous pieces of equipment, in response to the needs of disabled people, including the Wizzybug. The Wizzybug is ...
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A selection of toys available from cerebra's lending library

Our Library Brings Mum And Daughter Time

Three year old Alexandra likes jumping about, climbing as high as she can, going to the zoo and her iPad. She’s not so keen on loud noises, different textures and not knowing what she’s doing. Her mum, Jessica, explains: “Alexandra’s condition affects our whole family as we have had to adapt our whole day, week, month into Alexandra’s routine and way of thinking. It can ...
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Little boy looking through books, borrow ebooks from Cerebra.

Borrow ebooks

How to borrow ebooks and audiobooks If you are already a Cerebra library member and would like to use our BorrowBox library please email our librarian Jan at [email protected] to get your unique log in number. If you are not a library member, fill in the membership form to join now. Join our BorrowBox library to borrow any of our titles for free for 28 ...
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premature baby

Preventing Neonatal Brain Injury and Childhood Disability

From 2020 to 2024, Cerebra supported a research initiative at the University of Leeds aimed at preventing neonatal brain injuries, which can have lifelong impact on children’s development. These injuries are often associated with pregnancy complications such as foetal growth restriction (FGR), pre-eclampsia (PET), and preterm birth (PTB), conditions that affect up to 20% of pregnancies and can lead to irreversible outcomes. The program focused ...
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