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Webinars

Upcoming webinars Understanding neurodiversity in communication and social abilities in children with intellectual disabilities Free lunchtime webinar: Wednesday 14 May, 12.30pm - 2pm For parents, carers and professionals that support families People with intellectual disabilities are an incredibly diverse group, each with their own strengths and challenges in communication and social abilities, which can either support their wellbeing and community participation or create barriers that ...
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Videos of our Annual Conference are online!

On 14th June 2023, we hosted our in-person conference in Birdcage Walk, Westminster. The conference theme was Barriers to Breakthroughs: the positive impact of our collaborative research for children with complex needs and their families and attendees were treated to a host of talks from some world class academics who are undertaking research funded by Cerebra. Some of the key topics included; Pregnancy – identifying interventions ...
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Introducing Wizzybug – the fun way to get around for children with physical disabilities

The Wizzybug is an innovative powered wheelchair modelled on the ‘Little Tikes’ car, aimed at younger children with limited mobility up to 20kg. Designability is a charity that enables disabled people to live with greater independence, much like the aims of Cerebra. They have designed and made numerous pieces of equipment, in response to the needs of disabled people, including the Wizzybug. The Wizzybug is ...
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Consultation responses

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Clinical Utility of the Strengths and Difficulties Questionnaire as a Screening Measure

As part of Caitlin Murray’s Cerebra funded PhD, we looked at whether a general mental health measure for children (the Strengths and Difficulties Questionnaire) is a good measure for children with intellectual disability.  The Strengths and Difficulties Questionnaire is a 25-item scale used to measure emotional and behavioural difficulties, originally in children without disabilities, but has often been used with children and young people with ...
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Positive Gains Scale

We used 1000 Families data from Wave 1 as a part of an analysis of a scale for measuring the positive impact of a child with disability on parents (the Positive Gains Scale).  Much of disability family research focuses on the negative impact of caring for a child with learning and/or developmental disabilities, which can highlight challenges for families and allow us to identify and ...
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Evidence for the ‘Down Syndrome Advantage’

Previous research has found that mothers raising children with Down’s syndrome report lower levels of parenting stress and symptoms of depression than mothers raising children with other diagnoses. This has sometimes been known as the ‘Down’s syndrome advantage.’ The Family Research team, led by Mikeda Jess, found that in this study, like in other research, that mothers of children with Down syndrome in the 1000 ...
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Family relationships and their association with perceptions of family functioning in mothers of children with intellectual disability

Dr Emma Langley, Assistant Professor Much of the existing research into families of children with intellectual disabilities has focused on the individual with intellectual disability rather than the family as a whole. Therefore, Emma's study investigated three family sub-system relationships (marital/partner, parent-child, sibling) and their association with overall family functioning. Emma used mothers' responses from Wave 1 of the 1,000 Families Study measuring family functioning, and the quality of the ...
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COVID-19 impact on psychological outcomes of parents, siblings and children with intellectual disability

The Family Research Team examined the impact of COVID-19 restrictions on parents, siblings and children with a learning disability, using data obtained from Wave 2 of the 1000 Families Study collected both pre-lockdown and during/just after the first lockdown. This used data gathered from 397 family caregivers who completed Wave 2 of the study before the end of July 2020, with some having completed the survey before the ...
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Events

We'd love you have you on our team of Cerebra Superheroes. Whether you have your own place in an event or you need one of our places we'll be with you every step of the way.
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