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An Adapted Camera For Budding Photographer Archer

Mum Amanda explains how our Innovation Centre were able to cleverly adapt a camera so that her son could enjoy taking snaps alongside his sister. "Our son Archer is a happy boy, he loves playing with cars, building sandcastles, collecting rocks at the beach and Maui from the movie Moana! Archer has a right hemiplegia, caused by his severe epilepsy and made worse by his ...
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Helping The Whole Family To Play Together

Our son Sam has Angelman Syndrome and needs assistance with all aspects of life. He is developmentally delayed, non-verbal, has mobility issues, cerebral vision impairment and epilepsy. Sam’s epilepsy is well controlled at present but he suffers from seizures when he is unwell. He has no sense of danger so needs constant supervision. Sam is an active, sociable 12 year old. He thrives on 1:1 ...
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Rhys Makes A Splash With Our Innovative Paddle Board

Teenager Rhys has a rare, progressive genetic condition which affects his extremities and his physical strength. While he has tried surfing, and enjoys it when the sea is calm, he finds that getting wet and cold is difficult for him. His mum, Adele, contacted our Innovation Centre to see if they could come up with a plan to help Rhys enjoy the ocean in a ...
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Breaking Waves and Breaking Barriers

Cerebra recently helped a New York schoolboy to build one of the first custom adaptable surfboards in the United States!   The Cerebra Innovation Centre designs logical, innovative and fun adaptive solutions for children with brain conditions. One of these designs, an adaptive surfboard, caught the eye of Brandon Klein, a 17-year-old schoolboy from New York who wants to transform the surfing experience for disabled ...
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Hospital Saturday Fund donates to Cerebra at 150th anniversary event

Huge thanks to The Hospital Saturday Fund for their wonderful gift of £4,500 as part of their 150th anniversary celebrations   The reception was hosted by Ambassador, Martin Fraser at the Irish Embassy in London on 6th June and our Corporate Fundraising Manager, James Hay was in attendance alongside one or two celebs! The Hospital Saturday Fund (HSF) donated a total of £160,000/€176,000 to thirty-one ...
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Wales: Implementation of the ALN Act Extended Until August 2025

On March 20 2023, Jeremy Miles MS, Minister for Education and Welsh Language, issued a written statement announcing that the implementation of the Additional Learning Needs (ALN) reform was to be extended for compulsory school-aged pupils. The Minister explained that: …over the last six months, ALNCos, local authorities, special schools, head teachers, third sector providers and other education practitioners have told us that more time ...
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a woman hugging two small children

Seminar Review – Stigma and People with a Learning Disability

The first CEDAR seminar of 2023 was by Katrina Scior, Professor of Clinical Psychology and Stigma Studies at University College London. Professor Scior’s talk focused on stigma towards people with a learning disability (otherwise referred to as an intellectual disability). She discussed the many ways in which stigma negatively impacts the lives of people with a learning disability and her team’s important research on how ...
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Legal

Getting Direct Payments For 1:1 Support

Ben* is 6 years old and has autism, ADHD and epilepsy. His parents have to work long hours and need help to care for Ben during the holidays. He enjoys going to holiday clubs but because of his challenging behaviour he can only attend with 1:1 support. Ben’s parents needed direct payment support to pay for 1:1 assistance so that Ben could attend holiday clubs ...
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Our Sensory Drums hit all the right notes!

Our Sensory Drums are wooden crafted with patterned sides that allow children to combine different touches and sounds. There's a compartment, which includes a xylophone, a shaker and a range of different drum sticks. They help children with different sensory needs and also allow them to have lots of fun! Here's what some of the families have told us;   Kerry, Maddison's mum 'The benefits ...
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Legal

Challenging Parent Carer Blame

Disabled children and their families are one of the most severely disadvantaged groups in the UK. A major research report published in 2021 found that most English Children’s Services Authorities operate a ‘one size-fits-all’ approach to families – regardless of whether it is a parent carer seeking support for a disabled child or a family where the evidence suggests there to be neglect or abuse. ...
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