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Guide to Research about brain conditions - Cerebra the charity for children with brain conditions

Research About Childhood Brain Conditions

A guide for parents This guide is an overview of current research into childhood brain conditions and explains the research process. It also helps you evaluate the quality of research and information that is available to you. Currently under review.
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Cerebra the charity for children with brain conditions-research work

Research

In the UK today there are around half a million children and young people with brain conditions that result in complex medical, educational and social support needs. Our research work across neurodevelopmental conditions gives us a unique perspective within the charity research sector allowing us to provide research-driven solutions and advice to those who need it most.
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Mum with her daughter in a wheelchair

Disability Needs Assessment Policies and Parent Blame – Institutionalising Parent Blame

The experiences of disabled children and their families in their interaction with English children’s services departments.
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After diagnosis: what now?

A factsheet for parents This factsheet has been prepared as a starting point for parents of children that have just been diagnosed with a brain condition. It aims to provide an overview of the resources and information they need to get advice, help and support for their family. Key points Understanding a diagnosis Social care Financial aid Education Support How Cerebra can help Useful; contacts ...
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Children and young people with rare genetic syndromes and intellectual disability

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. CNDD's work on the emotion, cognition and behaviour of children and young people with rare genetic syndromes has been at the heart of their research for many years. Their aim is ...
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The mental health of children and young people with neurodevelopmental disorders

This is one of a series of end of grant reports from Cerebra Centre for Neurodevelopmental Disorders (CCND) explaining the focus of their work and their achievements for the project period 2014 – 2019. Not long ago it was thought that people with the most severe intellectual disability and complex needs did not experience the most common mental health problems such as anxiety and depression. ...
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Social Care in Wales - Cerebra the charity for children with brain conditions

Social Care in Wales

A guide for parents As the parent or carer of a disabled child you need to know the support you are entitled to in getting help for your child's social care needs. Our guide outlines exactly what social care the local authorities in Wales are responsible for and the support that is available to you as a parent or carer. We have also created a ...
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Social Care in England - Cerebra the charity for children with brain conditions

Social Care in England

A guide for parents As the parent or carer of a disabled child you need to know the support you are entitled to in getting help for your child's social care needs. Our guide outlines exactly what social care the local authorities in England are responsible for and the support that is available to you as a parent or carer. We have also created a ...
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Factsheet - Transition to Adulthood in Wales - Cerebra the charity for children with brain conditions

Transition to Adulthood in Wales

A factsheet for parents This factsheet highlights the importance of transition to adulthood in the lives of children with learning difficulties in Wales. It provides information about what is involved and helps you navigate and access the information, support and resources that are available. Key points What is transition and why is it important? Why it’s important to manage your child’s transition How to develop ...
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Cerebra Count Me In Lottery

Count Me In Lottery

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