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Evidence for the ‘Down Syndrome Advantage’

Previous research has found that mothers raising children with Down’s syndrome report lower levels of parenting stress and symptoms of depression than mothers raising children with other diagnoses. This has sometimes been known as the ‘Down’s syndrome advantage.’ The Family Research team, led by Mikeda Jess, found that in this study, like in other research, that mothers of children with Down syndrome in the 1000 ...
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Family relationships and their association with perceptions of family functioning in mothers of children with intellectual disability

Dr Emma Langley, Assistant Professor Much of the existing research into families of children with intellectual disabilities has focused on the individual with intellectual disability rather than the family as a whole. Therefore, Emma's study investigated three family sub-system relationships (marital/partner, parent-child, sibling) and their association with overall family functioning. Emma used mothers' responses from Wave 1 of the 1,000 Families Study measuring family functioning, and the quality of the ...
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COVID-19 impact on psychological outcomes of parents, siblings and children with intellectual disability

The Family Research Team examined the impact of COVID-19 restrictions on parents, siblings and children with a learning disability, using data obtained from Wave 2 of the 1000 Families Study collected both pre-lockdown and during/just after the first lockdown. This used data gathered from 397 family caregivers who completed Wave 2 of the study before the end of July 2020, with some having completed the survey before the ...
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1,000 families study

1,000 Families Study

The Family Research Group at the University of Warwick, in collaboration with Cerebra, is exploring the experiences of families who live with a child with a learning disability in the UK through the Cerebra 1000 Families Study. As far as we know, this is the largest ever longitudinal study of families of children with learning disability in the UK, and we would like to thank all families who ...
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happy disabled boy painting with his family

De-institutionalising Parent Blame

Luke discusses the need for a change in practice that could transform the experiences of disabled children and their families when interacting with English children's services departments.
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10k Steps a Day in May

Walk, run, hop, skip or jump your way to 10,000 steps a day throughout the month of May and help children living with a brain condition and their families discover a better life together. The challenge starts on Wednesday 1st May so make sure you register before then. It's absolutely free and we'll even send you your very own Cerebra t-shirt! And, if you raise ...
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Institutionalising Parent Blame

Luke explains the research report 'Institutionalising Parent Carer Blame'.
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Mum with her daughter in a wheelchair

Disability Needs Assessment Policies and Parent Blame – Institutionalising Parent Blame

The experiences of disabled children and their families in their interaction with English children’s services departments.
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Boy with a female carer, smiling.

Carers Rights and the Law (Wales)

In this video Professor Luke Clements looks at the rights of carers under the social care legislation in Wales, including parent carers and young carers. It is divided into five sections: Overview – assessing the needs of carers and disabled people Carer's Rights Parent carers and young carers Common problems Eligibility criteria The video is available in the Carers Rights Day 2020 Section of this ...
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Family

Care and Support Planning (England and Wales) – Part 2

This video looks at Care and Support Planning (for both disabled children and adults). Professor Luke Clements looks at how these identified eligible needs are translated into services in the community, for example engaging a care assistant, adaptations in the home, support to participate in community activities or direct payments. The video is divided into the following sections: Assessed needs must be met Guiding principles ...
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