I write this in support of the Systems Generated Trauma report. My experience of system generated trauma comes from a parental perspective, and as being a mother of a disabled child. My son was diagnosed with autism in his teenage years, however, prior to this and throughout his childhood, he had multiple difficulties that led […]
Navigating a complex system with complex needs Read More »
My severally autistic son was sectioned under the mental health act. Where he suffered mechanical, chemical and physical abuse. We experienced severe anxiety and lack of sleep. What could have been done differently by the public body? Wish we were believed and heard. Wish that the system could acknowledge the damage they caused. Advice I
I saw a request on Contact’s Facebook page for stories from families who have experienced Systems Generated Trauma and wanted to get in touch. I hadn’t heard of it before so I’m not sure if our story is what you are looking for. I’m getting emotional just writing this email. I find any mention of
I have two children, and my eldest child Lois is 10. Lois has a range of complex needs including autism, learning disability, extremely challenging behaviour and a number of health conditions. Lois is my joy. Having a disabled child is not the traumatic part. The trauma is seeking (or trying to seek) support from education,
The whole process is one of surveillance and scrutiny, not recognition or empathy Read More »
My son was traumatised by being placed in a hospital miles away from his home for 19 months from 2010 to 2012. Getting him discharged to a suitable quiet group care home nearby was difficult. I had help from a solicitor in the process. CBF helped with safeguarding for Emmanuel as he was attacked in
Traumatised in a hospital miles away from home Read More »
The ‘Three Strikes’ Rule Parents of children with brain conditions develop an exceptional awareness of their child’s baseline. Small changes can be significant, and knowing when “something isn’t right” becomes second nature. Yet, raising concerns within a healthcare system that can be fragmented or overly focused on existing diagnoses can be challenging, especially when a
The ‘Three Strikes’ Rule: How New NHS Guidance will Affect Families Read More »
Over the next three and a half years, Cerebra will support the next phase of this vital work. Led by experts Dr Jane Waite (Aston University), Prof Caroline Richards (University of Birmingham), Dr Jo Moss (University of Surrey), and Dr Hayley Crawford (University of Warwick), the Cerebra Network is a pioneering collaborative initiative, focusing on
The Cerebra Network: Funding the next phase (2025–2029) Read More »
ISOS Partnership has recently published a report, commissioned by the Local Government Association, on “The future of home to school transport” in England. The Local Government Association is a campaign group that seeks to influence government on behalf of councils. The report explores what is driving the widely publicised increases in school transport costs and
Cerebra’s response to the LGA/ISOS report on ‘The future of home to school transport’ Read More »
Cerebra welcomes the NHS’s decision to expand the Avoiding Brain Injuries in Childbirth (ABC) programme nationwide. The initiative, first piloted in 12 maternity units, provides enhanced training for maternity teams to better recognise and respond to medical emergencies during labour. By improving teamwork and communication in high-pressure situations, the programme aims to prevent avoidable brain
Preventing Birth Brain Injuries: A Positive Step for Families Read More »
12th – 18th May is Mental Health Awareness week. Our Librarian, Jan, has put together this list of her favourite books on mental health that are available to borrow from our library. L6803 – The Mental Health Handbook by Trevor Powell (2000) L6759 – The Sky’s The Limit: a workbook for teaching mental health wellbeing
Books in the Library on Mental Wellbeing Read More »