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Toys For Harley To Discover

Mum Lisa got in touch with our Toy Library in the hope of finding some toys that her son Harley would enjoy playing with. In this post she tells us a bit more. Tell us a bit about Harley Our two-year-old son Harley is a happy little boy, but due to a variety of reasons, he requires support, encouragement and assistance with almost every aspect ...
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Helping The Whole Family To Play Together

Our son Sam has Angelman Syndrome and needs assistance with all aspects of life. He is developmentally delayed, non-verbal, has mobility issues, cerebral vision impairment and epilepsy. Sam’s epilepsy is well controlled at present but he suffers from seizures when he is unwell. He has no sense of danger so needs constant supervision. Sam is an active, sociable 12 year old. He thrives on 1:1 ...
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Brain injury after severe illness and sepsis

Childhood viral and bacterial illnesses are common, and usually are easily treated. Sometimes, however, if the symptoms are left too long and the infection is allowed to worsen, children can become seriously unwell and sepsis can develop, which can cause damage to the body’s tissues and organs, including the brain, leading to life-long disabilities. In this article, we talk about sepsis, the condition that can ...
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apply for research funding from Cerebra

Is all this research actually doing anything?

This post is a summary of the conversation between the researchers and two undergraduate interns hosted by the Centre for Research in Intellectual and Developmental Disabilities (CIDD) for one month, June 2023. The content is the interns' own personal reflections on the conversation. Cerebra boasts an “extensive collection of research papers”, but is research actually influencing policy in the UK? Is research causing change or ...
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We’ve just added some new items to our e-library!

Our BorrowBox library has a selection of e-books and a-audiobooks that parent/carers can borrow to read or listen to and we have just added some new ones. They cover Autism; ADHD; Tourettes; toilet training; difficult emotions and many other subjects. They include the Best Sellers ‘Your Child is Not Broken’ by Heidi Mavir on e-book and ‘A Kind of Spark’ by Elle McNicoll on e-audiobook. ...
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Making a Noise!

Mum Emese told us that they lost most of her daughter's toys to smoke damage during a house fire earlier this year. As eight-year-old Rosamund loves making sounds with instruments, they were delighted to receive one of our sensory drum sets from our Innovation Centre. Emese told us all about her daughter: "Mundi has Syngap1 which is a rare genetic disorder. She is non-verbal, has ...
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An early Christmas present for Henry

You may well remember, back in the spring, we told you all about Henry and the super-lightweight crutches our Innovation Centre made for him. The last time we met Henry (who is a huge Harry Potter fan), he was 9 and a ¼, but he’s now at that ‘magic’ 9 and ¾! Henry has Cerebral Palsy and wanted to spend much more time out of ...
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Winners

This week's Lucky Winner Draw date: 1 May 2025 Winner: Mrs C Bryden from Canterbury, Kent Ticket number: 091371CT03 If you'd like to see winners from a week other than last week email us at [email protected] or call 01267 244218. Want to be our next winner? Get your tickets now if you'd like to see your name on this page next week! Play Now
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Little girl with paint on her hands.

Introducing Cerebra PhD Student Lauren Jenner

Lauren Jenner is a PhD student at the University of Surrey using novel methodologies to understand social abilities and autism in Prader-Willi syndrome and Down syndrome. I am currently in the third year of my PhD, funded by Cerebra. My research is on social abilities and autism characteristics in Prader-Willi syndrome (PWS), Down syndrome (DS) and non-syndromic autism (AUT). From October 2021 – January 2023, ...
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Family who needed help with the DLA.

Daniel Sutherland – Positive Family Connections

My name is Daniel Sutherland, and I am doing a PhD at the University of Warwick funded by Cerebra. My PhD involves working on a project which is also funded by Cerebra to develop and evaluate an intervention for families of children with developmental disabilities like learning disabilities or autism. About Me I studied psychology and psychological practice at the University of Birmingham, and my ...
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