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Cerebra what we do the charity for children with brain conditions.

Our response to the publication of The Independent Review of Children’s Social Care in England

In a sense, Josh MacAlister’s independent review of children’s social care was always going to disappoint. Billed as a “wide-ranging, independent review”, “a wholesale independent review of children’s social care” and “a once-in-a-generation opportunity to reform systems and services”, its remit was also to look at how the children’s social care system responded to all children who are referred to the system. Except that its ...
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Introducing Cerebra PhD Student Jessica Mingins

Jessica Mingins is a PhD student at Aston University, her Cerebra funded research is improving our understanding and assessment of anxiety in people with Fragile X syndrome and Cornelia de Lange syndrome. My PhD is focused on mental health in rare genetic syndromes associated with intellectual disability. Primarily, my focus is on assessment of anxiety and factors associated with anxiety in Fragile X Syndrome and ...
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Hatice Gundeslioglu and Wenyuan Liu

The Hidden Face of Autism

Wenyuan Liu Professor Mandy opened the seminar with some general thoughts about autism, particularly the history and changes in how autism has been defined over time, much of this was derived from his own research and clinical practice. Professor Mandy emphasised that the evolution of the definition of autism was driven by both scientific discoveries and social political changes. When autism was first described by ...
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GoTo Seat is a hit

Sales of the brilliant GoTo seat are raising money for Cerebra. We have kept you up to date with the development of one of our Innovation Centre's design exploits - the joint venture between Leckey and ourselves to develop the Goto Seat. Because the original design idea was ours we have a contract with Leckey called a Licensing Agreement. This means that every time they sell a ...
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Boy with a female carer, smiling.

Cerebra Funding for The Cerebra Network for Neurodevelopmental Disorders

We are delighted to announce £829,000 of funding for the Cerebra Network for Neurodevelopmental Disorders. Tracy Elliott, Head of Research and Information at Cerebra explains: "This funding, spread over the next four years, marks a strategic shift in our approach to funding research. We are investing in a collaborative and vibrant network of researchers, spread over different university centres, with the combined aim of improving ...
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University of Leeds LEaP students and staff.

Delivering Legal Rights End of Grant Report

The School of Law at the University of Leeds has published its end of grant report summarising the achievements of Cerebra funded research into ‘Delivering legal rights: practical problem solving’. This report summarises the achievements of the Cerebra Legal Entitlements and Problem-Solving (LEaP) Research Project for the period January 2016 – December 2019 The laws of the four nations of the UK place enforceable duties ...
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Parent and Carer Rights

Useful links There have been recent changes to the law relating to carers in England and Wales. Carers’ rights in England are set out in the Children and Families Act 2014, which came into force on 1st April 2016. For information on the law which applies in England, see: Contact a Family’s factsheet on carers’ assessments http://www.cafamily.org.uk/media/925803/carers_assessments.pdf Carers UK’s Looking After Someone (England) guide Carers Trust ...
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GoTo Seat

Families worldwide use their GoTo Seats in supermarket trolleys, on planes, swings and Granny’s dining chair. The GoTo seat makes daily tasks easier and means kids don’t need to miss out. It gives a little piece of independence that lets them see the world from a new perspective and feel they’re at the heart of the action. “Absolutely fantastic product! The GoTo seat is so ...
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Surfboard, Cerebra the charity for families of children with brain conditions

Surfboard

The tandem design includes a supportive seat for the child and plenty of space on the back for an experienced surfer to steer it in the right direction. They have been a great success providing endless hours of fun to thrill-seeking children who could not otherwise experience the benefits and thrill of catching waves. “He’s like the king of the sea. He can sit back ...
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Rocket Shelves

The mother had to transport numerous medical machines whilst transferring her son from room to room. We wanted to create something styled to suit a child’s bedroom rather than a hospital. They feature three shelves, space to store an oxygen bottle and a four socket extension lead so all the machines can be plugged in with the need for just one wall socket. The shelves ...
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