Our Impact Report for 2024 is here!

We are driven by a simple yet powerful belief that every child with a brain condition deserves to thrive. Everything we do is focused on supporting children, families, and carers to achieve this goal.

Our latest impact report highlights just some of the initiatives we have delivered, and the children and families we have supported.

Our face-to-face fundraisers are back!

Our team of friendly face-to-face fundraisers are back on the streets of Wales so you may meet them on your doorstep over the next few weeks.

Inaccessible, unacceptable and unaccountable

A major new research report into the provision of paediatric continence supplies reveals serious failings by health and social care bodies.

We’re asking for your support to demand the immediate development of national, fit-for-purpose guidelines for paediatric continence services for disabled children.

Win £5,000 in our Summer Prize Draw!

Your support this summer will help families like Farrah’s access vital, life-changing support through our Legal Rights Service.

We now offer specialist sleep training for professionals

The Cerebra Intermediate Paediatric Sleep Advice Consultant (CIPSAC) training is designed to give future sleep consultants all the necessary tools to fully assess and support the sleep of children with additional needs. This course is now accredited by OCN London as a Bespoke OCN Level 4 qualification.

How would you splash out if you won £1,500 in our weekly lottery?

Your support really makes a difference - 80p from every ticket goes directly towards our vital work helping children with brain conditions and their families discover a better life together.

Discover Fletchers Solicitors

As one of the UK’s most respected and trusted law firms, Fletchers Solicitors specialise in medical negligence and personal injury and have supported individuals, and their families, with life-changing injuries for over 30 years.

This can make normal activities such as learning, playing or simply experiencing the world a huge challenge. Through our research we offer solutions and advice to help these children and their families enjoy lives full of hope and discovery.

Research is the foundation for all our work

Whether we're providing an innovative solution to a problem or new research on an existing condition, we partner with our experts to produce research-driven, evidence-based services, advice and support.

We rely on donations to continue our vital work helping children with brain conditions and their families discover a better life together.

I need advice on

Getting the right education for your child – and sometimes just getting them there – can be a challenge.

We have guides to help you access the the right education for your child in England and Wales.

We also have guides on school transport in England and Wales.

We have a wide range of resources that help parents and carers access legal, social and financial help.

Download a step-by-step guide to filling in the Disability Living Allowance Claim Form.

Our Accessing Public Services Toolkit offers solutions to common problems when dealing with statutory agencies.

View information in our Legal, Social and Financial section.

At Cerebra we provide support and advice to help your child – and everyone in your family – get a good night’s sleep.

Download our Sleep Guide or look at our other sleep resources.

Tackle some of the most common sleep problems with some quick tips from our Sleep Cards.

Contact our sleep team for one-to-one help.

We all know that mental health is as important as physical health. Here are some resources to help you look after yourself and your loved ones.

Our Factsheet on Emotional Wellbeing looks at the importance of looking after yourself if you are a parent or carer.

We also have a Guide to Anxiety to help you spot signs of anxiety in your child and how to help them.

Toilet training can have a number of different causes and as a result require a range of approaches to manage and resolve issues.

Our Guide for Parents helps you understand your child’s individual needs when toilet training.

Our infographic Guide to Toilet Training is a visual aid to help you understand common problems and offers techniques to help.

Some behaviours are challenging for professionals and teachers as well carers and parents looking after children with a brain condition.

Download our Managing Challenging Behaviour Factsheet.

Our Guide to Pain helps you identify and manage pain in a child who is unable to communicate verbally.

Knowledge based on current research gives you the power to help your child, whatever their diagnosis.

You can borrow a book on your child’s condition from our library to help your understanding.

Our Guide to Research About Childhood Brain Conditions provides an introduction to research and offers advice on how to find good quality research and information.

Systems Generated Trauma Survey

Trauma related practice’ is a phrase increasingly used by public bodies to convey their awareness that many of those with whom they interact have experienced life ...

What is Cerebral Palsy?

Cerebral palsy is a medical condition resulting in disorders of movement because of an injury to the brain. It is usually (but not always) caused by ...

Louise and Fabs run 10k in the Festival of Inclusivity

A huge thank you to Louise Astill and Fabienne Cuthbert, from Fieldfisher for taking part in the Parallel Festival of Inclusivity for Cerebra on Sunday at ...
cerebra annual conference

Building practical solutions for traumatised families

On 9th July 2024 we jointly held a conference at the University of Leeds, School of Law to explore practical solutions to addressing what is referred ...
Family with siblings

New CEO For Cerebra

Jess Camburn is currently the Chief Executive and founder of Elrha, a global organisation that finds solutions to complex humanitarian problems through research and innovation. Jess ...

Our Library Service Helps Mum Feel Less Isolated

"Archie's favourite things are people, music and sport. If he could choose how to spend a day, he would go with friends to a sporting event, ...
cerebra annual conference

Seminar Review – To Mortality And Beyond

For the June CIDD seminar, we heard from Professor Stuart Todd - Professor in Intellectual Disability research at the University of South Wales, who discussed the ...
Cerebra library a child holding some books from the library.

New Books in the Library

Earlier in the year we decided to replace some of our older children’s books with more recent ones and they have just been added to our ...

Free webinar: Understanding and reducing sleep problems for children with genetic syndromes.

Free lunchtime webinar: Thursday 26th September 12.30pm-2.00pm Sleep problems present a significant challenge for parents and carers of children with intellectual disability. Poor sleep can affect ...
boy in a wheelchair with a carer stood behind him

Improving The Health And Wellbeing Of People With Intellectual Disabilities

Professor Cairns is Director of the Scottish Learning Disabilities Observatory, and Professor of Health and Neurodevelopmental Conditions in the School of Health and Wellbeing, at the ...

Introducing our new Chair of Trustees

‘I am honoured and delighted to have taken up the post of Chair at Cerebra. It’s a real privilege to be able to work with such ...

Book review: Jayben and the Golden Torch by Thomas Leeds

I have just been on an adventure with Jayben. Where do people go when they have a seizure? Jayben goes into a magical world of talking ...

I need advice on

education and transport

Getting the right education for your child – and sometimes just getting them there – can be a challenge.

We have guides to help you access the the right education for your child in England and Wales.

We also have guides on school transport in England and Wales.

DLA and accessing public services

We have a wide range of resources that help parents and carers access legal, social and financial help.

Download a step-by-step guide to filling in the Disability Living Allowance Claim Form.

Our Accessing Public Services Toolkit offers solutions to common problems when dealing with statutory agencies.

View information in our Legal, Social and Financial section.

getting some sleep

At Cerebra we provide support and advice to help your child – and everyone in your family – get a good night’s sleep.

Download our Sleep Guide or look at our other sleep resources.

Tackle some of the most common sleep problems with some quick tips from our Sleep Cards.

Contact our sleep team for one-to-one help.

stress and emotional wellbeing

We all know that mental health is as important as physical health. Here are some resources to help you look after yourself and your loved ones.

Our Factsheet on Emotional Wellbeing looks at the importance of looking after yourself if you are a parent or carer.

We also have a Guide to Anxiety to help you spot signs of anxiety in your child and how to help them.

toilet training and continence

Toilet training can have a number of different causes and as a result require a range of approaches to manage and resolve issues.

Our Guide for Parents helps you understand your child’s individual needs when toilet training.

Our infographic Guide to Toilet Training is a visual aid to help you understand common problems and offers techniques to help.

managing behaviour

Some behaviours are challenging for professionals and teachers as well carers and parents looking after children with a brain condition.

Download our Managing Challenging Behaviour Factsheet.

Our Guide to Pain helps you identify and manage pain in a child who is unable to communicate verbally.

understanding my child's condition

Knowledge based on current research gives you the power to help your child, whatever their diagnosis.

You can borrow a book on your child’s condition from our library to help your understanding.

Our Guide to Research About Childhood Brain Conditions provides an introduction to research and offers advice on how to find good quality research and information.

Our Services

We offer a range of free services that enrich the lives of children with brain conditions and support their families and carers.

Sleep Service

Sleep Advice Service

Advice and support helping you and your child get a good night’s sleep.

Library

Toy and Book Library

Borrow specialist books and toys from our free and easy to use library.

Parent Guides

Parent Guides

Comprehensive guides to legal, social, financial, educational and health issues. 

Cerebra Innovation Centre

Cerebra Innovation Centre

See how our dedicated team in Swansea might help your child with an incredible invention.

LEap

Legal Rights Service

Get information and help about your legal rights to health and social care services.